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How we work together with patient organisations

Find out how we work with patient organisations through our patient organisation network and Patient Advisory Committee.

Join the ELF Patient Organisation Network 

The ELF patient organisation network brings together diverse organisations and groups working in respiratory health from across Europe and beyond. Organisations in the network can cover all or any respiratory disease, can be large or small, and can work in supporting patients, providing information, driving research and many other vital activities.

The network:

  • promotes collaboration, networking and sharing best practice
  • helps individual patients and organisations find others in their country and disease area
  • raises awareness of patient organisations and their activities with the public, healthcare professionals, researchers and policy makers
  • provides opportunities for patient organisations and their members to get involved in research and advocacy; and
  • gives organisations a chance to drive and get involved in ELF and European Respiratory Society (ERS) activities

The network is free to join for organisations that fit the following criteria:

  • Not-for-profit respiratory health-related organisations that represent or work with patients
  • Based in Europe and/or represent patients in Europe
  • Interest in actively working with ELF and other organisations to improve respiratory health in Europe

Join the Patient Organisation Network Patient organisation network directory

Find out about the Patient Advisory Committee 

The ELF Patient Advisory Committee (PAC) plays an important role in all ELF strategic activities. Current members of the committee represent a wide range of lung disease patient organisations from across Europe. The PAC is a sub-committee of the ELF Council, the main body of ELF.

Members of the PAC are appointed for a 3-year period and invited to renew their membership every 3 years. The committee meets four times per year – normally three virtual meetings and one face to face meeting at the ERS Congress. Travel and accommodation costs for participation are covered by ELF.

Meet the PAC

ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79