European Lung Foundation
Close
Close
  • News
  • Contact
  • Language

    You are visiting our International site

    Our core content on Lung conditions and related factsheets has been translated to a number of other languages.

    Also available in...

    • fr Français
    • de Deutsch
    • it Italiano
    • es Español
    • pl polski
    • ru Русский
    • el Ελληνικά
    • pt Português

    For more languages explore all available Factsheet translations.

    Is your language missing?

    Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.

  • Donate
  • Search ELF
European Lung Foundation
European Lung Foundation
  • Information hub
    About Information Hub
    Information hub

    • All lung conditions
    • Living with a lung condition
    • Lung tests and procedures
    • Keeping lungs healthy
    • Organ donation
    • Understanding professional guidelines
    Menu Preview
    Information hub Інформація про здоров'я легенів укр - Information about lung health in Ukrainian Read more
  • Projects and campaigns
    Visit this section home
    Projects and campaigns

    • Patient Priorities
    • Healthy Lungs for Life
    • EU projects
    • Global Voices 2025
    • Chair’s Campaign
    Task forces and clinical research collaborations

    • About task forces and clinical research collaborations
    • List of task forces and clinical research collaborations
    Menu Preview
    Healthy Lungs for Life Look after your lungs with Healthy Lungs for Life! Read more
  • People and partners
    Visit this section home
    Meet the team

    • The ELF team
    • Patient Advisory Groups
    • Working groups
    • Youth Group
    Partners and patient organisations

    • ELF Patient Organisation Network
    • Our partnerships
    • Funding partners
    Your experiences

    • Your experiences
    • Global Voices 2025
    Awards

    • ELF Award
  • Get involved
    Visit this section home
    How we work together

    • Patients and care-givers
    • Healthcare professionals and researchers
    • Patient organisations
    • Journalists 
    The European Patient Ambassador Programme

    • The European Patient Ambassador Programme
    Take part in a survey

    • All surveys
    Events

    • All events
    • ELF calendar
  • Support us
    Visit this section home
    Donate to ELF

    • Donate to ELF today
    • Leave a legacy
    • Remember a loved one
    • Other ways to donate
    Fundraise for ELF

    • Fundraise for ELF
    Corporate and philanthropy

    • Become a corporate partner
    • Philanthropy and major gifts
  • About us
    Visit this section home
    About us

    • About ELF
    • The structure
    • Memory wall
    Our processes

    • Our patient input process
    FAQs

    • Frequently asked questions
    Publications

    • Publications
  • News
  • Contact
  • Language

    You are visiting our International site

    Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.

    Also available in...

    • fr Français
    • de Deutsch
    • el Ελληνικά
    • it Italiano
    • pl polski
    • pt Português
    • ru Русский
    • es Español

    For more languages explore all available Factsheet translations.

    Is your language missing?

    Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.

  • Donate

Home » Get involved » How we work together with patient organisations

How we work together with patient organisations

Find out how we work with patient organisations through our patient organisation network and Patient Advisory Committee.

Join the ELF Patient Organisation Network 

The ELF patient organisation network brings together diverse organisations and groups working in respiratory health from across Europe and beyond. Organisations in the network can cover all or any respiratory disease, can be large or small, and can work in supporting patients, providing information, driving research and many other vital activities.

The network:

  • promotes collaboration, networking and sharing best practice
  • helps individual patients and organisations find others in their country and disease area
  • raises awareness of patient organisations and their activities with the public, healthcare professionals, researchers and policy makers
  • provides opportunities for patient organisations and their members to get involved in research and advocacy; and
  • gives organisations a chance to drive and get involved in ELF and European Respiratory Society (ERS) activities

The network is free to join for organisations that fit the following criteria:

  • Not-for-profit respiratory health-related organisations that represent or work with patients
  • Based in Europe and/or represent patients in Europe
  • Interest in actively working with ELF and other organisations to improve respiratory health in Europe

Join the Patient Organisation Network Patient organisation network directory

Find out about the Patient Advisory Committee 

The ELF Patient Advisory Committee (PAC) plays an important role in all ELF strategic activities. Current members of the committee represent a wide range of lung disease patient organisations from across Europe. The PAC is a sub-committee of the ELF Council, the main body of ELF.

Members of the PAC are appointed for a 3-year period and invited to renew their membership every 3 years. The committee meets four times per year – normally three virtual meetings and one face to face meeting at the ERS Congress. Travel and accommodation costs for participation are covered by ELF.

Meet the PAC

Join our mailing list

Sign up to get the latest information and research on lung conditions, hear about our upcoming events and campaigns, plus views from experts and patients! You can unsubscribe at any time.

  • This field is for validation purposes and should be left unchanged.
European Lung Foundation European Respiratory Society
Lung conditions
  • All lung conditions
COVID-19
  • What is COVID-19
  • All expert information
External links
  • ERS
  • European Patient Ambassador Programme (EPAP)
Keeping lungs healthy
  • Keeping lungs healthy
Stay up to date
Get in touch
  • Terms of website use
  • Acceptable use policy
  • Accessibility
  • Privacy policy
  • Safeguarding policy
  • Inclusion and diversity

ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79

We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept”, you consent to the use of ALL the cookies. However you may visit Cookie Settings to provide a controlled consent.
Cookie settingsACCEPTREJECT
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Other
No description
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
CookieDurationDescription
__Secure-ROLLOUT_TOKEN6 monthsDescription is currently not available.
__Secure-YECpastDescription is currently not available.
__Secure-YNID6 monthsDescription is currently not available.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
CookieDurationDescription
_clck1 yearMicrosoft Clarity sets this cookie to retain the browser's Clarity User ID and settings exclusive to that website. This guarantees that actions taken during subsequent visits to the same website will be linked to the same user ID.
_clsk1 dayMicrosoft Clarity sets this cookie to store and consolidate a user's pageviews into a single session recording.
_ga1 year 1 month 4 daysGoogle Analytics sets this cookie to calculate visitor, session and campaign data and track site usage for the site's analytics report. The cookie stores information anonymously and assigns a randomly generated number to recognise unique visitors.
_ga_*1 year 1 month 4 daysGoogle Analytics sets this cookie to store and count page views.
CLID1 yearMicrosoft Clarity set this cookie to store information about how visitors interact with the website. The cookie helps to provide an analysis report. The data collection includes the number of visitors, where they visit the website, and the pages visited.
MR7 daysThis cookie, set by Bing, is used to collect user information for analytics purposes.
SMsessionMicrosoft Clarity cookie set this cookie for synchronizing the MUID across Microsoft domains.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
CookieDurationDescription
yt-remote-cast-availablesessionThe yt-remote-cast-available cookie is used to store the user's preferences regarding whether casting is available on their YouTube video player.
yt-remote-cast-installedsessionThe yt-remote-cast-installed cookie is used to store the user's video player preferences using embedded YouTube video.
yt-remote-connected-devicesneverYouTube sets this cookie to store the user's video preferences using embedded YouTube videos.
yt-remote-device-idneverYouTube sets this cookie to store the user's video preferences using embedded YouTube videos.
yt-remote-fast-check-periodsessionThe yt-remote-fast-check-period cookie is used by YouTube to store the user's video player preferences for embedded YouTube videos.
yt-remote-session-appsessionThe yt-remote-session-app cookie is used by YouTube to store user preferences and information about the interface of the embedded YouTube video player.
yt-remote-session-namesessionThe yt-remote-session-name cookie is used by YouTube to store the user's video player preferences using embedded YouTube video.
ytidb::LAST_RESULT_ENTRY_KEYneverThe cookie ytidb::LAST_RESULT_ENTRY_KEY is used by YouTube to store the last search result entry that was clicked by the user. This information is used to improve the user experience by providing more relevant search results in the future.
Save & Accept
Powered by CookieYes Logo