In this survey, we would like to learn about the aspects of living with bronchiectasis that are not usually included in medical research.

Why is this survey important?

Bronchiectasis affects people in many ways. We want to learn more about the real challenges faced by those living with bronchiectasis. We are particularly interested in topics that are often overlooked, such as:

  • Other health conditions
  • Medications
  • Gut health
  • Fertility and menopause

We are also interested in finding out if people with bronchiectasis are using herbal supplements and complementary therapies.

Your responses will help researchers and healthcare professionals improve understanding and care for people affected by bronchiectasis.

Who can participate?

Anyone aged 18 or over who has been diagnosed with bronchiectasis or who provides care for someone with bronchiectasis, is welcome to take part.

What does participation involve?

You will be asked to complete an anonymous online survey that includes questions about:

  • Your background (such as age and location)
  • Your health experiences with bronchiectasis
  • Topics not often discussed in research, including gut health, fertility, and alternative therapies

The survey should take 15 minutes to complete.

How will my information be used?

All answers will be anonymous and confidential. The information you provide will be used by researchers to better understand bronchiectasis and to help improve future care and treatments.

Your experience matters. By sharing your story, you can make a difference.

Help spread the word

We have created downloadable flyers in multiple languages to help raise awareness of the Untold Stories of Bronchiectasis survey. Whether you are part of a patient group, clinic or simply want to share it with your community, these flyers make it easy to encourage others to take part. Click below to download and share in your own language.