ERN-Lung BREATHeREGISTRY: Helping to improve research into rare lung conditions

Would you like to help researchers understand more about your condition and support research into rare respiratory diseases?

The ERN-Lung BREATHeREGISTRY is a European population registry that collects information from people living with rare respiratory diseases. It aims to improve knowledge, support research and ultimately contribute to better care and outcomes.

The registry is available in German and English. Patients and family members register online, enter their information and provide consent to share their data securely with researchers.

Once registered, you may be informed about disease-specific registries, research studies or clinical trials that could be relevant to you. Any contact is made through the secure email system within the registry.

By taking part, you help researchers understand not only the medical aspects of rare lung diseases, but also the lived experience behind them. This knowledge supports the development of improved treatments, services and care across Europe.

Your Data Matters – Make It Count.

To find out more or to register, visit: https://ern-lung-population-registry.mig-frankfurt.de/

Learn more about ERN-Lung at: https://ern-lung.eu/