A summary of a new statement published in the European Respiratory Journal
A new document has outlined standards that will provide the best level of care for children living with bronchiectasis.
Although bronchiectasis is considered a rare disease, it is now more common around the world than cystic fibrosis. There are quality standards for how to care for adults with bronchiectasis but these new standards are the first to address the care of children. The statement came ahead of the first World Bronchiectasis Day (1 July), which aims to raise awareness of the condition and help reach people who may be living with the condition without a diagnosis.
A group of experts, including healthcare professionals and patients, were involved in the production of the new standards. After discussions and global surveys to gather patient and professional views, the following 7 standards were agreed on:
These standards are a first step towards improving the overall quality of care for children and young people living with bronchiectasis. The authors hope that people living with bronchiectasis and their parents or carers can use the statement to advocate for better care for themselves/their children.
Read the original research paper:
International consensus statement on quality standards for managing children/young people with bronchiectasis from the ERS CRC Child-BEAR-Net: https://erj.ersjournals.com/content/59/6/2200264
Find out more about World Bronchiectasis Day:
Visit our Bronchiectasis information hub:
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.