ELF Patient Organisation Network

ACTIF Santé, a patient run, support NGO is based in Paris, France with 16 years experience in community management.
Our programmes help empower patients with NTM (non-tuberculous mycobacterial ) infection through information and training.
We develop activities (nutrition, airway clearance, focus groups) and advocacy that respond to the needs of patients and enhance the quality of life for them and their families.
Our association has been approved by the French Ministry of Health to carry out training in the field of health. Our methods of empowerment are based on the recommendations of the World Health Organization.

Covers:

• Non-tuberculosis mycobacteria

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Bronchiectasis
• COPD
• Lung surgery
• Lung transplantation
• Pneumonia
• Primary Ciliary Dyskinesia (PCD)
• Rare and orphan lung disease
• Upper airways diseases

Association of Chronic Cough

Trying to gather all chronic coughers in France and French speaking countries, to have chronic cough recognized as a real illness by the medical world and State Health Administration.

Covers:

• Cough

AFPF's aim is to create a broad community of patients suffering from Pulmonary Fibrosis and their loved ones. To support , inform, educate them and promote research on PF.

Covers:

• Idiopathic pulmonary fibrosis

Alpha-1 France (ADAAT)

The ADAAT association brings together families suffering from an alpha-1 antitrypsin deficiency. We help patients in their health journey. We work with doctors to improve patient care and we help research.

Covers:

• Alpha-1 antitrypsin deficiency

French Federation of Associations of respiratory patients (FFAAIR)

The FFAAIR and its 60 associations in all France work to favour the improving of patients’ life quality, to protect their interests, to promote health policies adapted to the need of patients. The FFAAIR is managed by volunteers: patients and sympathisers. This Federation is involved in actions concerning the information and the protection of the patients’ rights in the framework of the recognition of the respiratory diseases. The FFAAIR has elaborated the Charter of the patients who receive the care at home. This Chart determines the rights and responsibilities of home-care personnel and the patients.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

The association M.N.T. Mon Poumon Mon Air welcomes, supports and speaks out for people with the rare pulmonary non-tuberculous mycobacterial infection (NTM).

Covers:

• Non-tuberculosis mycobacteria