Asthma PAG activities


PAGs are set up to contribute to ELF and ERS priority-setting, and input into projects such as Task Forces and Clinical Research Collaborations (CRCs). PAGs may also contribute to other initiatives such as EU projects and ERS assemblies. Some PAGs may initiate their own patient-driven projects.

Learn more about the Asthma PAG's activities here:

Task Force: Guideline on the diagnosis and treatment of severe asthma
Task Force: Guideline on the diagnosis and treatment of severe asthma

Task Force: Guideline on the diagnosis and treatment of severe asthma

Members of the Asthma PAG helped to review the current guidelines from the European Respiratory Society on the treatment of asthma. Their feedback was used to develop a lay version of the guidelines, which are available to download in 3 languages. 

 


The SHARP project
The SHARP project

The SHARP project

The Severe Heterogeneous Asthma Research Collaboration, Patient-centred (SHARP) project aims to improve the understanding and treatment for severe asthma. It brings patients together with specialists, researchers and the pharmaceutical industry.

 

There are 2 patient co-chairs of the project, supported by a wider patient advisory group. Members of the Asthma PAG help to identify research topics and influence the design of research studies.


3TR project
3TR project

3TR project

The 3TR project aims to explain why some people living with asthma and COPD do not respond to treatment.

 

Members of the Asthma PAG help to identify treatment outcomes that are relevant to patients in the 3TR project and ensure that the patients who are taking part in the research are well-informed.


Asthma PAG members


PAG members come together to share their experiences of living with the condition, including how it can affect daily life, thoughts on treatment and other areas of patient advocacy. The group meets quarterly by video conference and communicates regularly via email. Meet some of our PAG members here.

Rikki Müller - profile image
Rikki Müller
United Kingdom

Rikki is keen to ensure that patients are able to share their experiences in living with a lung condition. They are a member of the Asthma PAG and the SHARP project, where they have reviewed projects focussing on artificial intelligence for lung conditions and discussed topics for future projects with researchers.


Betty Frankemölle - profile image
Betty Frankemölle
The Netherlands

Betty is 68 years old and a retired nurse. Alongside her involvement in the Asthma PAG, she is involved in several groups within the SHARP project, including the COVID-19 working group and Project Coordination team and is also a member of the SHARP Multimorbidity Core Group.

Betty is keen to learn from other people living with asthma and believes the patient voice is crucial in shaping research and care. She has attended several ERS Congresses and used her experiences to run workshops in the past.