Publications

http://www.imi.europa.eu/sites/default/files/archive/uploads/PatientWorkshop2016/UBIOPRED_guide_2016.pdf
Patient involvement

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

Author: Powell P
Published: 2016
Asthma

What is important to people with asthma: Maximising research impact?

Authors: Masefield S, Metcalf L, Powell P, Kennington E,  Lewis C ,  Walker S
Published: 2015
https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-015-0004-9
Patient involvement

Wagers on behalf of the U-BIOPRED PIP group. From tokenism to meaningful engagement: best practices in patient involvement in an EU project

Authors: D. Supple, A. Roberts, V. Hudson, S. Masefield, N. Fitch, M. Rahmen, B. Flood, P. Powell, S.
Published: 2015
https://erj.ersjournals.com/content/46/suppl_59/PA558
Pulmonary rehabilitation

The patient perspective on challenges to participating in pulmonary rehabilitation: An international web-based survey

Authors: Masefield S, Powell P,  Rochester C,  Vogiatzis G.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/25787221/
Chronic Cough

The impact of chronic cough: a European survey. Lung

Authors: Chamberlain S, Garrod R, Douiri A, Masefield S, Powell P, Bücher C, Morice A, Birring, S
Published: 2015
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5005162/
Bronchiectasis

The EMBARC European Bronchiectasis Registry: protocol for an international observational study

Authors: Chalmers JD, Aliberti S, Polverino E, Vendrell M, Crichton M, Loebinger M, Dimakou K, Clifton I, van der Eerden M, Rohde G, Murris-Espin M, Masefield S et al.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/25882805/
Smoking and e-cigarettes

Statement on smoking cessation in COPD and other pulmonary diseases and in smokers with comorbidities who find it difficult to quit

Authors: Jiménez-Ruiz A,  Andreas S,  Lewis KE,  Tonnesen P,  van Schayck CP,  Hajek P, Tonstad S,  Dautzenberg B ,  Fletcher M, Masefield S,  Powell P,  Hering T,  Nardini S,  Tonia T, Gratziou C.
Published: 2015
https://erj.ersjournals.com/content/48/3/632.abstract
Bronchiectasis

Research priorities in bronchiectasis: a consensus statement from the EMBARC Clinical Research Collaboration

Authors: Aliberti S, Masefield S, Polverino E, De Soyza A, Loebinger MR, Menendez R, Ringshausen FC, Vendrell M, Powell P, Chalmers JD.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/27288031/
Bronchiectasis

Research priorities in bronchiectasis: a consensus statement from the EMBARC Clinical Research Collaboration

Authors: Aliberti S, Masefield S, Polverino E, De Soyza A, Loebinger MR, Menendez R, Ringshausen FC, Vendrell M, Powell P, Chalmers JD
Published: 2015
https://www.bmj.com/content/350/bmj.h1325/rr-1
Patient involvement

Rapid response to observations: patient partnership – patients and healthcare conferences: what does true involvement look like?

Author: Dan Smyth
Published: 2015
https://erj.ersjournals.com/content/46/suppl_59/PA4520
Primary ciliary dyskinesia (PCD)

Diagnosing primary ciliary dyskinesia; the patient perspective

Authors: Behan L, Dunn Galvin A, Masefield S, Copeland F, Manion M, Rindlisbacher B, Redfern B, Lucas JS.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/27492837/
Primary ciliary dyskinesia (PCD)

Diagnosing primary ciliary dyskinesia; an international patient perspective

Authors: Behan L, Dunn Galvin A, Masefield S, Copeland F, Manion M, Rindlisbacher B, Redfern B, Rubbo B, Lucas JS ,
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/26623686/
Pulmonary rehabilitation

An Official American Thoracic Society/European Respiratory Society Policy Statement: Enhancing Implementation, Use, and Delivery of Pulmonary Rehabilitation

Authors: Rochester CL,  Vogiatzis I,  Holland AE,  Lareau SC,  Marciniuk DD,  Puhan MA,  Spruit MA,  Masefield S, Casaburi R,  Clini EM,  Crouch R,  Garcia-Aymerich J,  Garvey C,  Goldstein RS, Hill K, Morgan M,  Nici L, Pitta F, Ries AL, Singh SJ,  Troosters T, Wijkstra PJ,  Yawn BP, ZuWallack RL.
Published: 2015
http://breathe.ersjournals.com/content/11/4/249
Patient involvement

“Patients Included” in the European Respiratory Society International Congress

Authors: Smyth D, Powell P, Masefield S.
Published: 2015
EPAP

Web-based learning to support patient advocacy in rare diseases: the European Patient Ambassador Programme (EPAP)

Authors: Masefield S, Cassidy N, Powell P, Fletcher M, Hill K, McDonach E.
Published: 2014
http://breathe.ersjournals.com/content/10/1/8.full.pdf+html
Lung Function Testing

Support Healthy Lungs for Life: holding a spirometry event

Authors: Powell P, Masefield S, Anderson L, Fletcher M.
Published: 2014
https://breathe.ersjournals.com/content/10/4/283
Patient involvement

Patient voices at the ERS International Congress 2014: highlighting LAM

Authors: Fletcher M, Bassi I,
Published: 2014
https://breathe.ersjournals.com/content/10/1/5.short
ELF | HLfL

Healthy Lungs for Life campaign: a festival of lung health for the ERS International Congress, Munich and the globe

Authors: Eickelberg O, Fletcher M, Barnes P.
Published: 2014
Sign up to our newsletter