Publications

Children

Poster unpublished: Challenges facing parents and caregivers of children with interstitial lung disease (Child): international survey

Authors: J Boyd, C Gilbert, S Cunningham, N Schwerk, P Powell, S P Jerkic, M Schamberger
Published: 2018
Sarcoidosis

Poster discussion: Sarcoidosis – patient treatment priorities

Authors: J Boyd, R. Baughman, R Barriuso, K Beyer, J Hochreiter, C Knoet, F Martone, B Quadder, J Richardson, G Spitzer, D Valeyre, G Ziosi.
Published: 2018
https://openres.ersjournals.com/content/4/4/00085-2018
Pulmonary rehabilitation

Patients’ perspective on pulmonary rehabilitation: experiences of European and American individuals with chronic respiratory diseases

Authors: Carolyn R Rochester, Ioannis Vogiatzis, Pippa Powell, Sarah Masefield, Martijn A. Spruit
Published: 2018
https://erj.ersjournals.com/content/52/6/1800610
Lung Cancer

ERS Statement on harmonised standards for lung cancer registration and lung cancer services in Europe (Task force report)

Authors: A. L. Rich, D. R. Baldwin, P. Beckett, T. Berghmans, J. Boyd, C. Faivre-Finn, F. Galateau-Salle, F. Gamarra, B. Grigoriu, N. C. Hansen, G. Hardavella, E. Jakobsen, D. Jovanovic, A. Konsoulova, G. Massard, J. McPhelim, A. P. Meert, R. Milroy, L. Mutti, M. Paesmans, M. D. Peake, P. M. Putora, D. de Ruysscher, J. P. Sculier, A. Schepereel, D. Subotic, P. Van Schil, T. G. Blum
Published: 2018
https://openres.ersjournals.com/content/5/3/00126-2019.article-info
Aging

ERS Presidential Summit 2018: multimorbidities and the ageing population

Authors: Mina Gaga, Pippa Powell, Marta Almagro, Ioanna Tsiligianni, Stelios Loukides, Josep Roca, Matthew Cullen, Anita K. Simonds, Brian Ward, Isabel Saraiva, Thierry Troosters, Carlos Robalo Cordeiro
Published: 2018
https://erj.ersjournals.com/content/53/2/1801151
Smoking and e-cigarettes

Electronic cigarettes: a task force report from the European Respiratory Society

Authors: R. Bals, J. Boyd, Susanna Esposito, Robert Foronjy, Pieter S. Hiemstra, Carlos A Jimenez-Ruiz, Paraskevi Katsaounou, Anne Lindberg, Carlos Metz, Wolfgang Schober, Avrum Spira, Francesco Blasi.
Published: 2018
https://pubmed.ncbi.nlm.nih.gov/29326319/
Bronchiectasis

Cross-infection risk in patients with bronchiectasis: a position statement from the European Bronchiectasis Network (EMBARC), EMBARC/ELF patient advisory group and European Reference Network (ERN-Lung) Bronchiectasis Network

Authors: Chalmers J, Ringshausen F, Harris B, Elborn S, Posthumus A, Haworth C, Pilkington N, Polverino E, Ruddy T, Aliberti S, Goeminne P, Winstanley C, De Soyza A.
Published: 2018
Pulmonary rehabilitation

Cardiopulmonary exercise testing (CPET) patient survey

Authors: J Boyd, P. Powell, I. Vogiatzis, D. Kontopodis, H. Hebestreit.
Published: 2018
https://breathe.ersjournals.com/content/13/2/129.short
General lung health | HLfL

Top tips to deal with challenging situations: doctor–patient interactions.

Authors: Hardavella G, Aamli-Gaagnat A, Frille A, Saad N, Niculescu A, Powell P.
Published: 2017
https://erj.ersjournals.com/content/49/5/1602295
Asthma

The future of asthma research and development: a roadmap from the European Asthma Research and Innovation Partnership (EARIP)

Authors: Masefield S, Edwards J, Hansen K, Hamerlijnck D, Lisspers K, van der Schee M, Silva L, Matthews J, Gaga M, Adcock I, Holgate S, Walker S, Powell P
Published: 2017
http://breathe.ersjournals.com/content/breathe/13/3/194.full.pdf
Patient involvement

Patient participation in ERS guidelines and research projects: the EMBARC experience

Authors: Chalmers J, Timothy A, Polverino E, Almagro M, Ruddy T, Powell P, Boyd J
Published: 2017
https://erj.ersjournals.com/content/50/3/1700629
Bronchiectasis

European Respiratory Society guidelines for the management of adult bronchiectasis

Authors: Eva Polverino, Pieter C. Goeminne, Melissa J. McDonnell, Stefano Aliberti, Sara E. Marshall, Michael R. Loebinger, Marlene Murris, Rafael Cantón, Antoni Torres, Katerina Dimakou, Anthony De Soyza, Adam T. Hill, Charles S. Haworth, Montserrat Vendrell, Felix C. Ringshausen, Dragan Subotic, Robert Wilson, Jordi Vilaró, Bjorn Stallberg, Tobias Welte, Gernot Rohde, Francesco Blasi, Stuart Elborn, Marta Almagro, Alan Timothy, Thomas Ruddy, Thomy Tonia, David Rigau, James D. Chalmers.
Published: 2017
https://erj.ersjournals.com/content/50/6/1700901
Children

ERS statement: interventional bronchoscopy in children

Authors: Eber E , Antón-Pacheco JL , de Blic J, Doull I , Faro A , Nenna R , Nicolai T , Pohunek P , Priftis KN , Serio P, Coleman C, Masefield S, Tonia T, Midulla F.
Published: 2017
https://openres.ersjournals.com/content/3/2/00015-2017
Home ventilation

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Authors: Masefield S, Vitacca M, Dreher M, Kampelmacher M, Escarrabil J, Paneroni M, Powell P, Ambrosino N.
Published: 2017
https://erj.ersjournals.com/content/49/5/1602294
Asthma

Asthma research in Europe: a transformative agenda for innovation and competitiveness

Authors: Papadopoulos NG, Androutsopoulou A, Akdis C, Dahlén SE, Djukanovic R, Edwards J, L Garcia-Marcos,  Johnston SL, Kupczyk M, Martin TR, Myles D, Palkonen S, Powell P, Riley J, Walker S
Published: 2017
https://ersguide.org/images/articles/2017-2018/RED-006-2017.pdf
Lung Cancer

A Patient’s Journey Through Lung Cancer – just hear me out

Author: Tom Simpson
Published: 2017
https://openres.ersjournals.com/content/2/2/00102-2015
Rare disease

Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective

Authors: Bassi I, Hollis G, Cottin V, Harari S, Zwanenburg E, Veltkamp M, Casanova A, Fletcher M, Masefield S, Powell P, Boyd J.
Published: 2016
Home ventilation

The unmet needs of home mechanical ventilator users in Europe: the patients’ perspective

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.
Published: 2016
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