Congress

ELF Patient Organisation Networking Day 2025

Our annual Patient Organisation Networking Day will take place on Saturday 27 September 10:45 – 16:45 CEST. We will discuss important topics on lung health with the ELF Patient Organisation Network and invited speakers.

27/09/2025

About the event


The ELF Patient Organisation Networking Day is an opportunity for members of the ELF Patient Organisation Network to connect, share knowledge and explore current challenges in respiratory health. 

The 2025 event will take place on Saturday 27 September with the theme “Improving respiratory health – thinking globally, acting locally”.  

Public engagement with science is changing, offering both new challenges and opportunities. While misinformation can spread quickly online, these platforms also provide powerful spaces to share accurate, evidence-based knowledge with a global audience. In 2025, the respiratory community is facing significant challenges, including:

  • Climate change
  • Pandemic preparedness
  • Shifting political priorities
  • Health inequities
  • Reduced investment in research

Yet, these challenges also create opportunities for innovation, adaptation and continued leadership, as we work together to improve respiratory health for all.

This event offers a space to reflect on these developments and to learn from organisations that are responding in innovative ways, including local initiatives, national campaigns, and international efforts. Participants will have the chance to explore how organisations can support their patient communities and strengthen respiratory health in a fast-changing world.

Event highlights:

  • Expert talks on key issues in respiratory health
  • Interactive discussions to share insights and strategies
  • Peer-to-peer exchange to foster collaboration and learning

Patient Organisation Networking Day will be a hybrid event, allowing you to attend either in person or online. Full details on the agenda, speakers, and how to contribute will be announced soon.


Last year we explored topics relating to the theme: “Driving policy and healthcare change”. Attendees learned about the projects working to drive change and discussed the current barriers to improving lung health policy in breakout sessions. You can learn more about the 2024 event using the button below:

2024 event and report

Registration


It is free to attend ELF Patient Organisation Networking Day. You must register in advance in order to attend either online or in Amsterdam. To find out more and register, visit the ERS Congress event page.

ELF offers a limited number of travel bursaries to help cover the costs of travel and accommodation to Patient Organisation Networking Day and the ERS Congress. Find out more and apply for a travel bursary.

 

Chairs, speakers and contributors


To be announced soon.

Support ELF events


ELF does not charge for its events and materials. We want to make sure they are available to anybody who wishes to join or use them. To ensure we can keep doing this we ask that those who can afford to pay to make a donation.

We are grateful to everyone who supports us in this way and helps lung health patients to understand more about their condition and have their voices heard.

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