Wednesday Workshops at ERS Congress 2025

09:30-11:30 CEST

This session will explore the future of ERN-LUNG, the European network for rare respiratory diseases. Speakers will present new projects, including plans for an ERN-LUNG Academy to support education and training, improvements to how doctors across Europe collaborate on patient care, and how artificial intelligence (AI) can help diagnose and treat rare diseases. Co-chaired by Pippa Powell, Director of the European Lung Foundation, it will provide insights into how ERN-LUNG is working to enhance care for people with rare lung conditions. As patients are at the heart of ERN-LUNG this session is key to join from a patient perspective.

11:15-12:30 CEST

This session will explore how to effectively use research project results for further development or other purposes. It will highlight strategies for ensuring the successful use and application of outcomes, which is key to a project’s long-term impact. Examples from various projects will demonstrate how they engaged stakeholders, collaborated with organisations, and sustained momentum. Lungs Europe’s role in supporting research sustainability will also be discussed. Patient voice in this discussion is key to ensure that projects continue to support the needs of patients.

09:30-11:00 CEST

Focusing on the importance of working directly with patients, this session will explore how clinical and research innovations can meet patient needs. Attendees will discover strategies for involving patients and carers, from consultation to co-design, and learn how to capture their perspectives effectively. Real-life examples, such as co-designing balance training for COPD patients and adapting interventions to local contexts, will illustrate inclusive approaches to patient involvement. Patients will present and be involved in the panel discussion. Come and join the debate.

09:15-11:45 CEST

This session will highlight strategies for preventing respiratory diseases before they develop. Key prevention messages from the WHO’s Chronic Respiratory Disease report will be shared, alongside actions to improve air quality, particularly for children. Innovative prevention programmes like Healthy Lungs for Life and outreach initiatives in Amsterdam will be discussed, along with EU projects targeting lung disease prevention and addressing the impact of tobacco and vaping on public health. Breakout discussions will focus on overcoming primary prevention challenges. There will be presentations from patient orgs and a patient co-Chair.