The ELF Patient Organisation Network is open to all and includes respiratory patient organisations in Europe.
Search for patient organisations, either by region, country or disease, using the filters below. More detailed information is available for the patient organisations that have provided them.
Are you a respiratory patient organisation working in Europe? Would you like to be part of the network? Please take 5 minutes to tell us about your organisation, and we will add you to our network.
We aim to promote the uniting of all carriers of Alpha-1 antitrypsin deficiency and those who intend to contribute to the fight against this disease. We can protect those with the condition by facilitating access to services and information on the progress of research and to guarantee their rights as patients as well as inform and raise public awareness about the disease. We also aim to promote the dissemination of information to doctors, health professionals, public and private bodies also through the organisation of Congresses, Study Days.
The National Aspergillosis Centre Patients Support group Is funded by the NHS to improve awareness, give support & advice, provide a community for aspergillosis patients and support research.
The National Asthma Council Australia (NAC) is a national not-for-profit advisory body for health professionals dedicated to the treatment of asthma and related conditions.
National Health Action Force Nepal (NHAFN) works to promote health equity and improve access to healthcare for communities across Nepal. Guided by its vision of a healthier and more prosperous country, the organisation focuses on inclusivity and fairness in health services, particularly for people who face barriers to care. NHAFN is led by skilled health professionals and operates as a rapid‑response team during health emergencies, offering timely support where it is most needed. It takes a proactive approach to addressing health‑related challenges and works across a wide range of health issues through collaboration, public engagement and community‑focused initiatives.
Our mission is to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease. By supporting innovative research, working with patients and support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities for patients and healthcare providers, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients, and build a stronger network of doctors who are well-versed in treating this disease.
NTM Patient Care UK is a patient association and registered charity that is working to improve the lives of people with non-tuberculous
mycobacterial (NTM) infection in the UK. We are doing this by providing education and information to increase understanding of NTM
in both the clinical and patient communities. We are also working hard to improve support for NTM patients, their carers and families.
The OAKAD and patient library would like to support the establishment and maintenance of patient self-help groups and contribute to the transfer of skills and knowledge.
PRT organises lectures, campaigns and courses on various topics in the field of health. PRT is also a contact point for all citizens who have questions about health issues, living wills and patients' rights. We have made it our business to answer your questions about "patients' rights" and "patient wills" as best we can.
We are PCD Support UK. We're here for those affected by PCD, we talk about PCD as widely as possible and we champion research to improve its diagnosis, management.
Primary Ciliary Dyskinesia (PCD) is a rare, genetic disease affecting around 1 in 15,000 people in the UK. It is caused by abnormal motile cilia (motile cilia are the microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD can affect the lungs, nose, sinuses, ears and fertility.
PCD Sverige/Sweden is a nationwide, volunteer-run association that supports people affected by primary ciliary dyskinesia (PCD) in Sweden. Our objective is to enhance quality of life for individuals and families affected by PCD through:
PinkTree Foundation is India member organization of GAAPP. PinkTree Foundation is on a mission to assist patients suffering from any respiratory ailment. The Foundation will work with project partners at the grassroot level to improve lung health by enhancing awareness amongst patients, and driving change required to prevent the increasing prevalence of respiratory diseases in India.
The purpose of the Federation is to represent the interests of people suffering from asthma, allergic diseases and chronic obstructive pulmonary diseases, defending their rights and freedoms, coordinating activities in this area and creating conditions for the full and active participation of people suffering from asthma, allergic diseases and COPD in social life.
PCD Australia Foundation is a registered charity established in 2013 and run by a volunteer committee with support from respiratory specialists across Australia. The organisation works to increase awareness of Primary Ciliary Dyskinesia (PCD) among healthcare professionals and the wider community, helping to improve understanding and recognition of this rare condition.
The Foundation aims to support people living with PCD by promoting access to high‑quality care and improving quality of life for patients and families. It provides information, support services and community activities, advocates for the needs of those affected, raises funds to advance its work, and encourages research to improve diagnosis, treatment and long‑term management of PCD.
PROLONG VZW is an initiative by and for people with lung cancer or lung adenocarcinoma (mesothelioma) and their loved ones, who want to support each other and encourage contact between fellow sufferers by organising various activities. We are active all over Flanders (Belgium).
