
Hellenic Cystic Fibrosis Association (HCFA)
Hellenic Cystic Fibrosis Association (H.C.F.A.) established in 1983 and based in Athens in order to protect and provide care for patients suffering from Cystic Fibrosis (CF), a serious inherited disease that mainly affects the lungs with a very low life expectancy. HCFA represents 800 CF patients all over Greece and is a founding member of Greek Patients Association and representative of Greece in the international organizations Cystic Fibrosis Europe, Cystic Fibrosis Worldwide, Eurordis, ERS, ELF, ESOT-European Transplant Patient Organizations. During its 39 years history, HCFA has managed to change the map of Cystic Fibrosis in Greece, bringing together CF patients all over Greece and medical professionals, improving the quality of life for patients, promoting high quality research, education and care and raising public awareness. In 2020 HCFA managed to ensure early access to the revolutionary triple combination therapy, saving the lives of Greek patients in critical condition and launched the organ donation and lung transplantations campaign “Unlimited Breath – Be a Life Donor”. HCFA continues its work dynamically aiming to ensure “Unlimited Breath” to CF patients all over Greece.
Covers:
- Cystic fibrosis
www.cysticfibrosis.gr