ELF Patient Organisation network

The ELF Patient Organisation Network is open to all and includes respiratory patient organisations in Europe.

Search for patient organisations, either by region, country or disease, using the filters below. More detailed information is available for the patient organisations that have provided them.

Are you a respiratory patient organisation working in Europe? Would you like to be part of the network? Please take 5 minutes to tell us about your organisation, and we will add you to our network.

Join network
Lam Support Ireland
Lam Support Ireland

Lam Support Ireland

Our main aim to raise awareness of Lam in Ireland and let women in Ireland know there is support out there for them.


Covers:

  • LAM

www.lamsupportireland.ie
Lélek-zet Egyesület
Lélek-zet Egyesület

Lélek-zet Egyesület

Breathing Association, Hungary


Covers:

  • COVID-19
  • Lung cancer
  • Smoking cessation

www.lelekzetegyesulet.hu
LHL International Tuberculosis Foundation
LHL International Tuberculosis Foundation

LHL International Tuberculosis Foundation


Covers:

  • Tuberculosis

www.lhl.no/lhl-internasjonal
Longfonds
Longfonds

Longfonds

Lung Foundation Netherlands

Lung Foundation Netherlands (Longfonds) is the leading not-for-profit lung health organisation and patients’ association in the Netherlands. We are the biggest private financier of lung research in Europe and have been funding major scientific research designed to generate vital knowledge about chronic lung diseases for over six decades. Longfonds campaigns to improve the quality of care and supports patients. As part of the organisation’s effort to improve lung health, Longfonds actively advocates policies that promote clean air.


Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.longfonds.nl
Lung Cancer Europe (LuCE)
Lung Cancer Europe (LuCE)

Lung Cancer Europe (LuCE)

Lung Cancer Europe (LuCE) is the voice of lung cancer patients, their families and survivors at a European level. LuCE provides a European platform for already existing lung cancer patient advocacy groups and supports the establishment of national lung cancer patient groups in different European countries where such groups do not yet exist. LuCE aims to raise awareness about inequities regarding the access to lung cancer treatment and care in Europe. Moreover, it advocates European policies that will lead to improvements in lung cancer prevention, early detection, treatment and care.


Covers:

  • Lung cancer

www.lungcancereurope.eu
Lung Foundation Australia (LFA)
Lung Foundation Australia (LFA)

Lung Foundation Australia (LFA)

Lung Foundation Australia is the nation’s leading and trusted lung health charity. We fund life-saving research, advocate for increased government support and deliver programs and services that transform the lives of those impacted by lung disease and lung cancer, giving hope in every breath.


Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.lungfoundation.com.au
Lungenfibrose Forum Austria
Lungenfibrose Forum Austria

Lungenfibrose Forum Austria

Lung Fibrosis Forum Austria

Covers:

  • Pulmonary Fibrosis

www.lungenfibroseforum.at
Lungenliga / Ligue pulmonaire / Lega polmonare
Lungenliga / Ligue pulmonaire / Lega polmonare

Lungenliga / Ligue pulmonaire / Lega polmonare

Swiss Lung Association

The Swiss Lung Association provides care and advice for people with lung and respiratory diseases so that they can live as symptom-free and independently as possible and achieve a higher quality of life. Well-networked by experts, the Swiss Lung Association represents the concerns of its patients and promotes their self-help. Through prevention, the Lung League works to ensure that fewer people fall ill with lung and respiratory diseases.


Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.lung.ch
Malta Health Network
Malta Health Network

Malta Health Network

The Malta Health Network (MHN) promotes the health-related interests of patients and the wider community by updating itself about international ‘best practices’ and ‘capacity-building’. The MHN achieves this through its regular contacts with local and international health-related Governmental Organisations, Non-Governmental Organisations, ‘Not-for-Profit’ Organisations and Patient Representative Groups. The MHN strives to give patients a voice in health-related for a in Malta, in the EU and internationally. The MHN is independent of the Government of Malta and of any political party or organisation. When the MHN was established in 2007, it represented 20 founder-organisations: today it represents over 30. The MHN is especially active in promoting The European Charter of Patients’ Rights.


Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.maltahealthnetwork.org
Mesothelioma UK
Mesothelioma UK

Mesothelioma UK

Mesothelioma UK is a national specialist resource centre, specifically for the asbestos-related cancer, mesothelioma. The charity is dedicated to providing specialist mesothelioma information, support and education, and to improving care and treatment for all UK mesothelioma patients and their carers. The charity integrates into NHS front line services to ensure specialist mesothelioma nursing is available at the point of need. This is achieved through a growing network of specialist mesothelioma nurses, regionally based in NHS hospitals funded by Mesothelioma UK.


Covers:

  • Lung cancer
  • Mesothelioma

www.mesothelioma.uk.com
Mucovereniging – Association Muco
Mucovereniging – Association Muco

Mucovereniging – Association Muco

Belgian Association for the Fight Against Cystic Fibrosis

Covers:

  • Cystic fibrosis

www.muco.be
Nacionalno udruženje Alergija i ja
Nacionalno udruženje Alergija i ja

Nacionalno udruženje Alergija i ja

National organization Allergy and me, Serbia

Covers:

  • Allergies

www.alergijaija.com
Northern Trust Pulmonary Fibrosis Support Group (NTPFSG)
Northern Trust Pulmonary Fibrosis Support Group (NTPFSG)

Northern Trust Pulmonary Fibrosis Support Group (NTPFSG)

The NTPFSG was set up by Respiratory Consultant Eoin Murtagh Specialist Respiratory Nurse Pat Gorman in 1995. We provide support, guidance, advice and signposting to sufferers of pulmonary fibrosis and their families from all over Northern Ireland. We have recently become a charity and are working to provide a bespoke respite facility for sufferers and their families. We work with all five health trusts here and also form part of the all party working group on lung health for our nation.


Covers:

  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease

www.northerntrustpfsg.com
NTM Info & Research, Inc.
NTM Info & Research, Inc.

NTM Info & Research, Inc.

Our mission is to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease. By supporting innovative research, working with patients and support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities for patients and healthcare providers, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients, and build a stronger network of doctors who are well-versed in treating this disease.


Covers:

  • Non-tuberculosis mycobacteria

www.ntminfo.org
Offene Akademie & Patienten-Bibliothek gemeinnützige GmbH (OAKAD)
Offene Akademie & Patienten-Bibliothek gemeinnützige GmbH (OAKAD)

Offene Akademie & Patienten-Bibliothek gemeinnützige GmbH (OAKAD)

Open Academy & Patient-Library non profit GmbH

The OAKAD and patient library would like to support the establishment and maintenance of patient self-help groups and contribute to the transfer of skills and knowledge.

www.Patienten-Bibliothek.de

www.Patienten-Bibliothek.org


Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.Patienten-Bibliothek.de
Österreichische Lungenunion (ÖLU)
Österreichische Lungenunion (ÖLU)

Österreichische Lungenunion (ÖLU)

Austrian Lung Union (ÖLU)

Covers:

  • Acute lower respiratory infections
  • Acute respiratory distress syndrome
  • Adult asthma
  • Allergies
  • Alpha-1 antitrypsin deficiency
  • Asthma
  • Bronchiectasis
  • ChILD
  • Childhood asthma
  • COPD
  • Cough
  • COVID-19
  • Cystic fibrosis
  • Idiopathic pulmonary fibrosis
  • Interstitial lung disease
  • LAM
  • Lung cancer
  • Lung disease in children
  • Lung surgery
  • Lung transplantation
  • Mesothelioma
  • Non-tuberculosis mycobacteria
  • Occupational lung disease
  • Other lung diseases
  • Pneumonia
  • Pneumothorax
  • Primary Ciliary Dyskinesia (PCD)
  • Pulmonary arterial hypertension
  • Pulmonary embolism
  • Pulmonary Fibrosis
  • Pulmonary Hypertension
  • Pulmonary vascular disease
  • Rare and orphan lung disease
  • Sarcoidosis
  • Sleep apnoea
  • Sleep disordered breathing
  • Smoking cessation
  • Tuberculosis
  • Upper airways diseases

www.lungenunion.at
Patientenorganisation Lungenemphysem – COPD Deutschland
Patientenorganisation Lungenemphysem – COPD Deutschland

Patientenorganisation Lungenemphysem – COPD Deutschland

Patient organisation Pulmonary Emphysema – COPD Germany

Covers:

  • COPD

www.lungenemphysem-copd.de
Patiëntenvereniging longtransplantatie UZ Leuven (HALO vzw)
Patiëntenvereniging longtransplantatie UZ Leuven (HALO vzw)

Patiëntenvereniging longtransplantatie UZ Leuven (HALO vzw)

Lung Transplant Patient Association, Belgium

Covers:

  • Lung transplantation

www.halovzw.info
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