Zena has worked alongside ELF since 2019 as a parent-patient advisory member on non-cystic fibrosis bronchiectasis in childhood. Her son Ed was diagnosed with bronchiectasis 9 years ago, having first showed symptoms at 5 months old.

Zena's role within the Childhood Bronchiectasis PAG has included getting involved on the Taskforce to produce guidelines and set future research priorities. Since 2021, she has also been an active member of Child-BEAR-Net and sits alongside Ed on the ELF Core Council.

Charlotte Wright joined the Childhood Bronchiectasis PAG after her son was diagnosed with bronchiectasis aged 8. She is passionate about contributing to research around childhood bronchiectasis and to help raise awareness of the condition.

My name is Frederica and my daughter Anna has had bronchiectasis since she was 4 years old. When she was younger she often became ill with pneumonia and needed to stay in hospital.

After seeking advice from Dr Kantar in Bergamo, Anna was diagnosed with bronchiectasis and could receive the correct treatment and her quality of life improved. Anna is now 16 years old and in her third year of high school where she plays sports and goes out with friends. Alongside being treated for bronchiectasis, Anna does breathing exercises every day and these help to manage her symptoms.