Publications

https://doi.org/10.1183/2312508X.10022224
Patient involvement

Respiratory physiology: a patient perspective

Authors: Senek M, Powell P, Williams C, McNeil L, Galetti I, Hamerlijnck D, Rawlinson J
Publication type: Monograph chapter
Published: 2025
https://doi.org/10.1183/2312508X.10018723
COVID-19 | Patient involvement

The patient perspective of the pandemic

Author: Williams C
Publication type: Monograph chapter
Published: 2024
https://doi.org/10.1183/2312508X.10006123
COPD | Patient involvement

The patients’ perspective on living with COPD and their priorities for future research and care

Authors: Senek M, Badyda A, Barbaglia S, Barker A, Dąbrowiecki P, Jacomelli C, Jelen T, Ramiconi V, Saraiva I, Skaar K M, Coleman C
Publication type: Monograph chapter
Published: 2024
https://doi.org/10.1183/2312508X.10017420
Patient involvement | Pulmonary rehabilitation

Patient experiences of pulmonary rehabilitation

Authors: Harrison S L, Powell P, Lahham A
Publication type: Monograph chapter
Published: 2021
https://doi.org/10.1183/2312508X.10020517
Patient involvement

The tuberculosis patients’ perspective

Authors: Spita G, Clegg H, Dumitru M, Sommerfeld P, Coleman C, Powell P
Publication type: Monograph chapter
Published: 2018
https://doi.org/10.1183/2312508X.10002724
Patient involvement

Lung transplantation: the patient perspective

Authors: Anderson L, Jones S, Hollis G
Publication type: Monograph chapter
Published: 2024
https://doi.org/10.1183/2312508X.10035623
Patient involvement

Transition of care: the patient perspective

Authors: Hansen K, Anderson L
Publication type: Monograph chapter
Published: 2024
https://doi.org/10.1183/2312508X.10008723
Patient involvement

Epilogue: A view of tuberculosis care from tuberculosis survivors

Authors: Tisile P, Makanda G
Publication type: Monograph chapter
Published: 2023
https://doi.org/10.1183/2312508X.10032218
Alpha-1 Antitrypsin deficiency | Patient involvement

Alpha-1 antitrypsin deficiency: Patient view

Authors: Wilkens M, Hannah T
Publication type: Monograph chapter
Published: 2019
https://doi.org/10.1183/2312508X.10015117
Bronchiectasis | Patient involvement

Bronchiectasis: A patient’s perspective

Authors: Almagro Manero M, Boyd J
Publication type: Monograph chapter
Published: 2018
https://doi.org/10.1055/s-0044-1778923
IPF | Pulmonary fibrosis

Das COCOS-IPF Projekt: Entwicklung eines Core Outcome Sets (COS) für und mit PatientInnen mit Pulmonaler Fibrose in einem kollaborativen Ansatz

Authors: Schenk S, Somogyi V, Delameillieure A, Toreyin Z, Uckuyu N, Unat O, Sen E, Stenzel N, Kreuter M, Mogulkoc N, Wuyts W, Galvin L, Jones S, Powell P, Starchenko P, Boyd J, Liagka N, Bajwah S, Tong A, Tonia T, Vaccaro V, Dobbels F
Publication type: Academic Publication
Published: 2024
https://doi.org/10.1183/13993003.congress-2024.PA5173
Pulmonary fibrosis

Good health’ for patients with PPF: Insights from patient-led international focus groups

Authors: Schenk S, Sen E, Boyd J, Delameillieure A, Van Bulck L, Somogyi V, Toreyin ZN, Uckuyu N, Unat OS, Dobbels F, Galvin L, Kreuter M, Mogulkoc N, Stenzel NM, Wuyts W, Powell P, Starchenko P, Liagka N, Tonia T, Jones S
Publication type: Conference abstract
Published: 2024
https://doi.org/10.1183/13993003.congress-2024.PA2444
IPF | Pulmonary fibrosis

Identifying outcome domains to establish a core outcome set for progressive pulmonary fibrosis: a scoping review.

Authors: Toreyin ZN, Delameillieure A, Schenk S, Somogyi V, Sen E, Van Bulck L, Üçkuyu N, Unat ÖS, Kreuter M, Mogulkoc N, Stenzel N, Wuyts W, Jones S, Galvin L, Boyd J, Powell P, Starchenko P, Liagka N, Bajwah S, Tonia T, Dobbels F
Publication type: Conference abstract
Published: 2024
https://www.jaci-inpractice.org/article/S2213-2198(25)00420-9/abstract
Asthma | Digital health

Artificial Intelligence-Generated Answers to Patients’ Questions on Asthma: The Artificial Intelligence Responses on Asthma Study

Authors: Nigro M, Aliverti A, Angelucci A, Braido F, Canonica GW, Bossios A, Pinnock H, Boyd J, Powell P, Aliberti S
Publication type: Academic Publication
Published: 2025
https://doi.org/10.1183/13993003.02327-2024

The future of the European Respiratory Society: strategy update 2025

Authors: Gappa M, Ryan S, Garcia-Aymerich J, Wijkstra P, Roche N, Pinnock H, Hoffmann B, Robalo Cordeiro C, Kontopidis D, Dupasquier S, Harabosky A, Powell P, Sealy S, Zecca V, Bill W
Publication type: Editorial
Published: 2025
https://doi.org/10.1183/13993003.02520-2024

ERS Clinical Research Collaboration programme: more than research networking–enriching respiratory science and impacting clinical practice in Europe and beyond

Authors: Pepke-Żaba J, Chorostowska-Wynimko J, Ryan S, Randerath W, Meiners S, Saglani S, Heuvelin E, Genton C, Gappa M, Powell P, Polverino E, Roche N, Siddiqui S
Publication type: Editorial
Published: 2025
https://doi.org/10.1183/2312508X.10022224
ELF | Patient involvement

Respiratory physiology: a patient perspective

Authors: Senek M, Powell P, Williams C, McNeil L, Galetti I, Hamerlijnck D, Rawlinson J
Publication type: Monograph chapter
Published: 2025
https://doi.org/10.1016/j.jaip.2025.04.051
Asthma | Digital health

Artificial Intelligence–Generated Answers to Patients’ Questions on Asthma: The Artificial Intelligence Responses on Asthma Study

Authors: Nigro M, Aliverti A, Angelucci A, Braido F, Canonica GW, Bossios A, Pinnock H, Boyd J, Powell P, Aliberti S, Amati F, Carpagnano GE, Cherneva RV, De Simoni A, Diver S, Fouka E, Karadag BT, Meshram PL, Mijakoski D, Ryan DP, Scarano P, Solanki S, Sreter KB, Stafler P, Ten Brinke A, Virchow CJ, Visca D, Vukicevic Lazarevic V, Wand O
Publication type: Academic Publication
Published: 2025