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European Lung Foundation

European Lung Foundation

Language
You are visiting our International site

Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.

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For more languages explore all available Factsheet translations.

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Publications

https://doi.org/10.1183/20734735.0189-2025

More than the method: contrasting experiences of compassion in interventional pulmonology

Author: test

Publication type: Editorial

Published: 2025

https://doi.org/10.1016/S2213-2600(24)00297-2

Breaking barriers: holistic assessment of ability to work in patients with sarcoidosis

Publication type: Research letter

Published: 2024

https://doi.org/10.1183/13993003.01504-2023

Diagnostic delay and access to care in bronchiectasis: data from the EMBARC/ELF patient survey

Publication type: Research letter

Published: 2024

European Respiratory Society statement on preschool wheezing disorders: updated definitions, knowledge gaps and proposed future research directions

Publication type: ERS Statement

Published: 2024

https://doi.org/10.1016/S2213-2600(24)00187-5

Mirtazapine to alleviate severe breathlessness in patients with COPD or interstitial lung diseases (BETTER-B): an international, multicentre, double-blind, randomised, placebo-controlled, phase 3 mixed-method trial

Published: 2024

https://doi.org/10.1183/13993003.congress-2024.PA1327

Developing a quality of life outcome measure for paediatric severe asthma: a field-testing survey

Publication type: Conference abstract

Published: 2024

https://doi.org/10.1183/13993003.00691-2024

Patient-centred composite scores as tools for assessment of response to biological therapy for paediatric and adult severe asthma

Publication type: Academic Publication

Published: 2024

https://doi.org/10.1183/2312508X.10022224

Patient involvement

Respiratory physiology: a patient perspective

Authors: Senek M, Powell P, Williams C, McNeil L, Galetti I, Hamerlijnck D, Rawlinson J

Publication type: Monograph chapter

Published: 2025

https://doi.org/10.1183/2312508X.10018723

COVID-19 | Patient involvement

The patient perspective of the pandemic

Author: Williams C

Publication type: Monograph chapter

Published: 2024

https://doi.org/10.1183/2312508X.10006123

COPD | Patient involvement

The patients’ perspective on living with COPD and their priorities for future research and care

Authors: Senek M, Badyda A, Barbaglia S, Barker A, Dąbrowiecki P, Jacomelli C, Jelen T, Ramiconi V, Saraiva I, Skaar K M, Coleman C

Publication type: Monograph chapter

Published: 2024

https://doi.org/10.1183/2312508X.10017420

Patient involvement | Pulmonary rehabilitation

Patient experiences of pulmonary rehabilitation

Authors: Harrison S L, Powell P, Lahham A

Publication type: Monograph chapter

Published: 2021

https://doi.org/10.1183/2312508X.10020517

Patient involvement

The tuberculosis patients’ perspective

Authors: Spita G, Clegg H, Dumitru M, Sommerfeld P, Coleman C, Powell P

Publication type: Monograph chapter

Published: 2018

https://doi.org/10.1183/2312508X.10002724

Patient involvement

Lung transplantation: the patient perspective

Authors: Anderson L, Jones S, Hollis G

Publication type: Monograph chapter

Published: 2024

https://doi.org/10.1183/2312508X.10035623

Patient involvement

Transition of care: the patient perspective

Authors: Hansen K, Anderson L

Publication type: Monograph chapter

Published: 2024

https://doi.org/10.1183/2312508X.10008723

Patient involvement

Epilogue: A view of tuberculosis care from tuberculosis survivors

Authors: Tisile P, Makanda G

Publication type: Monograph chapter

Published: 2023

https://doi.org/10.1183/2312508X.10032218

Alpha-1 Antitrypsin deficiency | Patient involvement

Alpha-1 antitrypsin deficiency: Patient view

Authors: Wilkens M, Hannah T

Publication type: Monograph chapter

Published: 2019

https://doi.org/10.1183/2312508X.10015117

Bronchiectasis | Patient involvement

Bronchiectasis: A patient’s perspective

Authors: Almagro Manero M, Boyd J

Publication type: Monograph chapter

Published: 2018

https://doi.org/10.1055/s-0044-1778923

IPF | Pulmonary fibrosis

Das COCOS-IPF Projekt: Entwicklung eines Core Outcome Sets (COS) für und mit PatientInnen mit Pulmonaler Fibrose in einem kollaborativen Ansatz

Authors: Schenk S, Somogyi V, Delameillieure A, Toreyin Z, Uckuyu N, Unat O, Sen E, Stenzel N, Kreuter M, Mogulkoc N, Wuyts W, Galvin L, Jones S, Powell P, Starchenko P, Boyd J, Liagka N, Bajwah S, Tong A, Tonia T, Vaccaro V, Dobbels F

Publication type: Academic Publication

Published: 2024

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ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79