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Publications

https://openres.ersjournals.com/content/2/2/00102-2015
Rare disease

Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective

Authors: Bassi I, Hollis G, Cottin V, Harari S, Zwanenburg E, Veltkamp M, Casanova A, Fletcher M, Masefield S, Powell P, Boyd J.
Published: 2016
Home ventilation

The unmet needs of home mechanical ventilator users in Europe: the patients’ perspective

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.
Published: 2016
https://blogs.bmj.com/bmj/2016/11/11/the-european-lung-foundations-patient-organisation-day/
Patient involvement

The European Lung Foundation’s patient organisation day

Author: Dan Smyth
Published: 2016
https://pubmed.ncbi.nlm.nih.gov/27102185/
Smoking and e-cigarettes

SmokeHaz: Systematic reviews and meta-analyses of the effects of smoking on respiratory health

Authors: Jayes L, Haslam P, Gratziou C, Powell P, Britton J, Vardavas C, Jiménez-Ruiz C, Leonardi-Bee J.
Published: 2016
https://openres.ersjournals.com/content/2/2/00009-2016
Smoking and e-cigarettes

Recommendations to improve smoking cessation outcomes from people with lung conditions who

Authors: Masefield S, Powell P, Jiménez-Ruiz C, Hajek P, Lewis K, Andreas S, Tønnesen P, van Schayck O, Gratziou C, Dautzenberg B, Tonstad S, Hering T, Nardini S, Fletcher M
Published: 2016
https://breathe.ersjournals.com/content/12/3/201.short
Air pollution

How do you explain the risk of air pollution to your patients?

Authors: Powell P, Brunekreef B, Grigg J.
Published: 2016
https://breathe.ersjournals.com/content/12/3/236
About ELF

European Lung Foundation: from local to global

Authors: Powell P, Williams S, Smyth D
Published: 2016
Asthma

Driving Investment in Asthma Research in Europe: Priorities to Prevent, Cure and Manage Asthma More Effectively

Authors: Masefield S, Powell P, Walker S
Published: 2016
Home ventilation

Calling for comfort – the unmet needs of European home ventilation users

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.
Published: 2016
Asthma

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

Authors: Walker S, Akdis C, Dahlén S-E, Djukanovic R, Edwards J, Garcia-Marcos L, Johnston S, Kupczyk M, Martin T, Myles D, Palkonen S, Papadopoulos N, Powell P, Riley J
Published: 2016
http://www.imi.europa.eu/sites/default/files/archive/uploads/PatientWorkshop2016/UBIOPRED_guide_2016.pdf
Patient involvement

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

Author: Powell P
Published: 2016
Asthma

What is important to people with asthma: Maximising research impact?

Authors: Masefield S, Metcalf L, Powell P, Kennington E,  Lewis C ,  Walker S
Published: 2015
https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-015-0004-9
Patient involvement

Wagers on behalf of the U-BIOPRED PIP group. From tokenism to meaningful engagement: best practices in patient involvement in an EU project

Authors: D. Supple, A. Roberts, V. Hudson, S. Masefield, N. Fitch, M. Rahmen, B. Flood, P. Powell, S.
Published: 2015
https://erj.ersjournals.com/content/46/suppl_59/PA558
Pulmonary rehabilitation

The patient perspective on challenges to participating in pulmonary rehabilitation: An international web-based survey

Authors: Masefield S, Powell P,  Rochester C,  Vogiatzis G.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/25787221/
Chronic Cough

The impact of chronic cough: a European survey. Lung

Authors: Chamberlain S, Garrod R, Douiri A, Masefield S, Powell P, Bücher C, Morice A, Birring, S
Published: 2015
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5005162/
Bronchiectasis

The EMBARC European Bronchiectasis Registry: protocol for an international observational study

Authors: Chalmers JD, Aliberti S, Polverino E, Vendrell M, Crichton M, Loebinger M, Dimakou K, Clifton I, van der Eerden M, Rohde G, Murris-Espin M, Masefield S et al.
Published: 2015
https://pubmed.ncbi.nlm.nih.gov/25882805/
Smoking and e-cigarettes

Statement on smoking cessation in COPD and other pulmonary diseases and in smokers with comorbidities who find it difficult to quit

Authors: Jiménez-Ruiz A,  Andreas S,  Lewis KE,  Tonnesen P,  van Schayck CP,  Hajek P, Tonstad S,  Dautzenberg B ,  Fletcher M, Masefield S,  Powell P,  Hering T,  Nardini S,  Tonia T, Gratziou C.
Published: 2015
https://erj.ersjournals.com/content/48/3/632.abstract
Bronchiectasis

Research priorities in bronchiectasis: a consensus statement from the EMBARC Clinical Research Collaboration

Authors: Aliberti S, Masefield S, Polverino E, De Soyza A, Loebinger MR, Menendez R, Ringshausen FC, Vendrell M, Powell P, Chalmers JD.
Published: 2015

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