Publications

https://openres.ersjournals.com/content/3/2/00015-2017

Home ventilation

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Authors: Masefield S, Vitacca M, Dreher M, Kampelmacher M, Escarrabil J, Paneroni M, Powell P, Ambrosino N.

Published: 2017

https://erj.ersjournals.com/content/49/5/1602294

Asthma

Asthma research in Europe: a transformative agenda for innovation and competitiveness

Authors: Papadopoulos NG, Androutsopoulou A, Akdis C, Dahlén SE, Djukanovic R, Edwards J, L Garcia-Marcos, Johnston SL, Kupczyk M, Martin TR, Myles D, Palkonen S, Powell P, Riley J, Walker S

Published: 2017

https://ersguide.org/images/articles/2017-2018/RED-006-2017.pdf

Lung Cancer

A Patient’s Journey Through Lung Cancer – just hear me out

Author: Tom Simpson

Published: 2017

https://openres.ersjournals.com/content/2/2/00102-2015

Rare disease

Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective

Authors: Bassi I, Hollis G, Cottin V, Harari S, Zwanenburg E, Veltkamp M, Casanova A, Fletcher M, Masefield S, Powell P, Boyd J.

Published: 2016

Home ventilation

The unmet needs of home mechanical ventilator users in Europe: the patients’ perspective

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.

Published: 2016

https://blogs.bmj.com/bmj/2016/11/11/the-european-lung-foundations-patient-organisation-day/

Patient involvement

The European Lung Foundation’s patient organisation day

Author: Dan Smyth

Published: 2016

https://pubmed.ncbi.nlm.nih.gov/27102185/

Smoking and e-cigarettes

SmokeHaz: Systematic reviews and meta-analyses of the effects of smoking on respiratory health

Authors: Jayes L, Haslam P, Gratziou C, Powell P, Britton J, Vardavas C, Jiménez-Ruiz C, Leonardi-Bee J.

Published: 2016

https://openres.ersjournals.com/content/2/2/00009-2016

Smoking and e-cigarettes

Recommendations to improve smoking cessation outcomes from people with lung conditions who

Authors: Masefield S, Powell P, Jiménez-Ruiz C, Hajek P, Lewis K, Andreas S, Tønnesen P, van Schayck O, Gratziou C, Dautzenberg B, Tonstad S, Hering T, Nardini S, Fletcher M

Published: 2016

https://breathe.ersjournals.com/content/12/3/201.short

Air pollution

How do you explain the risk of air pollution to your patients?

Authors: Powell P, Brunekreef B, Grigg J.

Published: 2016

https://breathe.ersjournals.com/content/12/3/236

About ELF

European Lung Foundation: from local to global

Authors: Powell P, Williams S, Smyth D

Published: 2016

Asthma

Driving Investment in Asthma Research in Europe: Priorities to Prevent, Cure and Manage Asthma More Effectively

Authors: Masefield S, Powell P, Walker S

Published: 2016

Home ventilation

Calling for comfort – the unmet needs of European home ventilation users

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.

Published: 2016

Asthma

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

Authors: Walker S, Akdis C, Dahlén S-E, Djukanovic R, Edwards J, Garcia-Marcos L, Johnston S, Kupczyk M, Martin T, Myles D, Palkonen S, Papadopoulos N, Powell P, Riley J

Published: 2016

http://www.imi.europa.eu/sites/default/files/archive/uploads/PatientWorkshop2016/UBIOPRED_guide_2016.pdf

Patient involvement

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

Author: Powell P

Published: 2016

Asthma

What is important to people with asthma: Maximising research impact?

Authors: Masefield S, Metcalf L, Powell P, Kennington E, Lewis C , Walker S

Published: 2015

https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-015-0004-9

Patient involvement

Wagers on behalf of the U-BIOPRED PIP group. From tokenism to meaningful engagement: best practices in patient involvement in an EU project

Authors: D. Supple, A. Roberts, V. Hudson, S. Masefield, N. Fitch, M. Rahmen, B. Flood, P. Powell, S.

Published: 2015

https://erj.ersjournals.com/content/46/suppl_59/PA558

Pulmonary rehabilitation

The patient perspective on challenges to participating in pulmonary rehabilitation: An international web-based survey

Authors: Masefield S, Powell P, Rochester C, Vogiatzis G.

Published: 2015

https://pubmed.ncbi.nlm.nih.gov/25787221/

Chronic Cough

The impact of chronic cough: a European survey. Lung

Authors: Chamberlain S, Garrod R, Douiri A, Masefield S, Powell P, Bücher C, Morice A, Birring, S

Published: 2015

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Publications

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Asthma research in Europe: a transformative agenda for innovation and competitiveness

A Patient’s Journey Through Lung Cancer – just hear me out

Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective

The unmet needs of home mechanical ventilator users in Europe: the patients’ perspective

The European Lung Foundation’s patient organisation day

SmokeHaz: Systematic reviews and meta-analyses of the effects of smoking on respiratory health

Recommendations to improve smoking cessation outcomes from people with lung conditions who

How do you explain the risk of air pollution to your patients?

European Lung Foundation: from local to global

Driving Investment in Asthma Research in Europe: Priorities to Prevent, Cure and Manage Asthma More Effectively

Calling for comfort – the unmet needs of European home ventilation users

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

What is important to people with asthma: Maximising research impact?

Wagers on behalf of the U-BIOPRED PIP group. From tokenism to meaningful engagement: best practices in patient involvement in an EU project

The patient perspective on challenges to participating in pulmonary rehabilitation: An international web-based survey

The impact of chronic cough: a European survey. Lung

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