ELF Patient Organisation network

The Association of Patients with Respiratory Failure and Lung Transplantation (APRFLT) is an organisation that fully understands the challenges that lung disease patients face. Therefore, we strive to promote contacts and empathy between patients with lung diseases, as well as their adaptation to a changed lifestyle. We aim to improve their mental and physical well-being through forms of personal, organizational and financial support. We also help spread scientific information about the disease and access to innovative therapies. APRFLT is a full member of the ESOT-ETPO Alliance.

Covers:

• Adult asthma
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• COPD
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Lung cancer
• Lung surgery
• Lung transplantation
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea

Apnoic Italian Association APS

Covers:

• Sleep apnoea

The AAG is highly specialised: gathering more than 110 patients all affected by severe asthma or EGPA. It's a unique association focused on the pathology of severe asthma. Our main focus is to help emerging the 30,000 potential severe asthma patients throughout Italy. We are a part of the associative network of FederAsma and Allergies ODV, a member of EFA , and participate in the 3TR project.

Covers:

• Asthma

Bronchiectasis Italian Association (AIB)

AIB is an Italian patient association and its mission is "Help to know and handle bronchiectasis".

Covers:

• Bronchiectasis

COPD Patient Association, Italy (Ass BPCO)

The Association aims to increase the knowledge of COPD and its management by patients and their families on the basis of the most recent scientific findings, in order to improve their health conditions and quality of life. It acts as an interlocutor for the institutions, to pursue the implementation of tools, including legislative ones, aimed at improving the protection of the chronic respiratory patient, promoting information, education and prevention campaigns and supporting scientific medical and pharmacological research.

Covers:

• COPD

Asthma + Lung UK will bring lasting benefits to everyone in the UK affected by asthma and other lung diseases. It is a powerful voice for all respiratory diseases for change and to get more, and better, investment in the NHS.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Covers:

• Allergies
• Asthma

Asthma- and Allergy Association, Sweden

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma and Allegy, Belgium

We aim to provide good information on Asthma and Allergy and this to patients and everyone concerned.

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma-Allergy Denmark

Covers:

• Allergies
• Asthma

Asthma.rs, Serbia

Astma.rs is a non-profit organisation with the main goal to give support and information to patients and their families about asthma, HOBP, allergy, and other respiratory diseases.

Covers:

• Adult asthma
• Asthma
• Childhood asthma

Dutch Association of Pulmonary Fibrosis Patients

The Dutch Association of Pulmonary Fibrosis patients is there for pulmonary fibrosis patients and their families. Pulmonary fibrosis is a rare disease which effects a few thousand patients in the Netherlands. We stimulate and financially support research into the causes and treatment of pulmonary fibrosis. We work closely together with healthcare professionals and with sister organisations throughout Europe. Together with the Dutch Lung Foundation we stand for patients with a lung disease. We believe that patients should be well-informed about their disease; it makes them stronger and helps them to get the best possible care.

Covers:

• Pulmonary Fibrosis

The association was founded 2015 with the aim of supporting pulmonary hypertension patients in Croatia, raising awareness and spreading information about pulmonary hypertension.

Covers:

• Pulmonary Hypertension

Patient led and patient funded local support group for patients with respiratory conditions, family, carers and friends.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

The Bulgarian Society of Patients with Pulmonary Hypertension (BSPPH) is an organisation that fully understands the challenges faced by pulmonary hypertension (PH) patients and their loved ones. Therefore, we strive to encourage contacts and empathy between PH patients, as well as their adaptation to their changed lifestyle. We aim to improve their mental and physical well-being through forms of personal, organisational and financial support. We also help disseminate scientific information about the disease. Access to innovated therapies. BSPPH is a member of the largest patient association in Bulgaria - National Patients' Organization , which is officially recognised by the Ministry of Health as the only nationally represented patient organisation in the country. BSPPH is a full member of PHA Europe, and EURORDIS. The association also has an excellent cooperation with ELF.

Covers:

• Pulmonary Hypertension

A strong patient group executive with a medical director forms the key infrastructure to the maintenance phase of CSAN. Improving patient-centered care structures for individuals with asthma remains the focus – and in particular for individuals with severe asthma, the most difficult-to-control 5-10% of asthma patients. This will hopefully lessen the impact of asthma currently within our Canadian health care system (severe asthma accounts for 50-60% cost of asthma).

Covers:

• Asthma

Czech Civil Association Against Lung Diseases (COPN)

• Founded in 1999 as Czech Civic Association Against COPD following the GOLD Initiative
• Czech national lung patients´ organisation
• Members: patients with chronic pulmonary diseases and pneumologists
• Specialised local clubs for patients with identic dg.: COPD, asthma, interstitial lung diseases (ILD), sarcoidosis, lung carcinoma, sleep disorders, post-transplant patients
• Aims: information and education for both specialists and the public about news in diagnostics and treatment of lung diseases
• Participation in World COPD Day including press conference, broad information campaign (radio, TV, press)
• Countrywide spirometry testing for members of the public each year
• Traditional conference on COPD every November in Prague for patients and health care workers
• Participation in patients´ organisation activities on both national (including Ministry of Health) and international level (ELF – Patient Advisory Committee, EFA, COPD Global, GAAPP).
• Czech Pneumological and Phthisiological Society is the professional guarantor of ČOPN activities.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Covers:

• ChILD