ELF Patient Organisation Network

COPD Patient Association, Italy (Ass BPCO)

The Association aims to increase the knowledge of COPD and its management by patients and their families on the basis of the most recent scientific findings, in order to improve their health conditions and quality of life. It acts as an interlocutor for the institutions, to pursue the implementation of tools, including legislative ones, aimed at improving the protection of the chronic respiratory patient, promoting information, education and prevention campaigns and supporting scientific medical and pharmacological research.

Covers:

• COPD

Asthma + Lung UK will bring lasting benefits to everyone in the UK affected by asthma and other lung diseases. It is a powerful voice for all respiratory diseases for change and to get more, and better, investment in the NHS.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Covers:

• Allergies
• Asthma

Asthma Association Netherlands and Davos (asthmaVereniging Nederland en Davos) advocates for people living with severe asthma. It shares knowledge and offers support to people with the condition.

Covers:

• Asthma

Asthma Ghana is a charity working to reduce the burden of asthma, COPD and allergies across the country. The organisation is dedicated to saving lives by increasing awareness of respiratory conditions and supporting people affected through community‑focused initiatives.
Asthma Ghana provides support, advocacy and education for patients and families, and promotes research to improve understanding, prevention and management of respiratory diseases. Through its outreach and engagement activities, the organisation works to strengthen respiratory health and ensure that people living with these conditions receive the care and information they need.

Covers:

• Allergies
• Asthma

The Asthma Society of Ireland’s mission is to stop asthma deaths in Ireland. We are the voice of the 380,000 people with asthma in Ireland, and our work radically transforms their quality of life. We fight asthma with every breath. Our vision is that everyone with asthma in Ireland lives a full life, symptom-free.

Covers:

• Adult asthma
• Asthma

Asthma- and Allergy Association, Sweden

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma and Allegy, Belgium

We aim to provide good information on Asthma and Allergy and this to patients and everyone concerned.

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma-Allergy Denmark

Covers:

• Allergies
• Asthma

Asthma.rs, Serbia

Astma.rs is a non-profit organisation with the main goal to give support and information to patients and their families about asthma, HOBP, allergy, and other respiratory diseases.

Covers:

• Adult asthma
• Asthma
• Childhood asthma

Covers:

• Rare and orphan lung disease

Dutch Association of Pulmonary Fibrosis Patients

The Dutch Association of Pulmonary Fibrosis patients is there for pulmonary fibrosis patients and their families. Pulmonary fibrosis is a rare disease which effects a few thousand patients in the Netherlands. We stimulate and financially support research into the causes and treatment of pulmonary fibrosis. We work closely together with healthcare professionals and with sister organisations throughout Europe. Together with the Dutch Lung Foundation we stand for patients with a lung disease. We believe that patients should be well-informed about their disease; it makes them stronger and helps them to get the best possible care.

Covers:

• Pulmonary Fibrosis

The Belgian Lung Foundation is fully committed to promoting lung health and combating respiratory diseases, with the aim of improving overall respiratory health in Belgium. Their mission is based on concrete actions, including public awareness, supporting research, developing prevention programs, and guiding patients in their care journey.

The association was founded 2015 with the aim of supporting pulmonary hypertension patients in Croatia, raising awareness and spreading information about pulmonary hypertension.

Covers:

• Pulmonary Hypertension

Patient led and patient funded local support group for patients with respiratory conditions, family, carers and friends.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Breathing Association was established to ease the lives of patients and their families with airway diseases, such as Asthma, COPD, and Bronchiectasis, and to assist in their joint representation in medical institutions and government bodies with professionalism, fairness, transparency, and faith in the way.

Covers:

• Asthma
• Bronchiectasis
• COPD

Bronchiektasen e.V. is the first patient organization in German-speaking countries dedicated to people living with bronchiectasis. Our mission is to connect patients, raise awareness, and strengthen their voice in research, healthcare, and policy. We advocate for earlier diagnosis, better quality of life, and increased recognition of this often-overlooked condition. Our vision: a self-determined life despite chronic illness – supported by knowledge, digital tools and a committed community.

Covers:

• Bronchiectasis

The Bulgarian Society of Patients with Pulmonary Hypertension (BSPPH) is an organisation that fully understands the challenges faced by pulmonary hypertension (PH) patients and their loved ones. Therefore, we strive to encourage contacts and empathy between PH patients, as well as their adaptation to their changed lifestyle. We aim to improve their mental and physical well-being through forms of personal, organisational and financial support. We also help disseminate scientific information about the disease. Access to innovated therapies. BSPPH is a member of the largest patient association in Bulgaria - National Patients' Organization , which is officially recognised by the Ministry of Health as the only nationally represented patient organisation in the country. BSPPH is a full member of PHA Europe, and EURORDIS. The association also has an excellent cooperation with ELF.

Covers:

• Pulmonary Hypertension