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https://doi.org/10.1183/13993003.congress-2024.PA5173
Pulmonary fibrosis

Good health’ for patients with PPF: Insights from patient-led international focus groups

Authors: Schenk S, Sen E, Boyd J, Delameillieure A, Van Bulck L, Somogyi V, Toreyin ZN, Uckuyu N, Unat OS, Dobbels F, Galvin L, Kreuter M, Mogulkoc N, Stenzel NM, Wuyts W, Powell P, Starchenko P, Liagka N, Tonia T, Jones S
Publication type: Conference abstract
Published: 2024
https://doi.org/10.1183/13993003.congress-2024.PA2444
IPF | Pulmonary fibrosis

Identifying outcome domains to establish a core outcome set for progressive pulmonary fibrosis: a scoping review.

Authors: Toreyin ZN, Delameillieure A, Schenk S, Somogyi V, Sen E, Van Bulck L, Üçkuyu N, Unat ÖS, Kreuter M, Mogulkoc N, Stenzel N, Wuyts W, Jones S, Galvin L, Boyd J, Powell P, Starchenko P, Liagka N, Bajwah S, Tonia T, Dobbels F
Publication type: Conference abstract
Published: 2024
https://www.jaci-inpractice.org/article/S2213-2198(25)00420-9/abstract
Asthma | Digital health

Artificial Intelligence-Generated Answers to Patients’ Questions on Asthma: The Artificial Intelligence Responses on Asthma Study

Authors: Nigro M, Aliverti A, Angelucci A, Braido F, Canonica GW, Bossios A, Pinnock H, Boyd J, Powell P, Aliberti S
Publication type: Academic Publication
Published: 2025
https://doi.org/10.1183/13993003.02327-2024

The future of the European Respiratory Society: strategy update 2025

Authors: Gappa M, Ryan S, Garcia-Aymerich J, Wijkstra P, Roche N, Pinnock H, Hoffmann B, Robalo Cordeiro C, Kontopidis D, Dupasquier S, Harabosky A, Powell P, Sealy S, Zecca V, Bill W
Publication type: Editorial
Published: 2025
https://doi.org/10.1183/13993003.02520-2024

ERS Clinical Research Collaboration programme: more than research networking–enriching respiratory science and impacting clinical practice in Europe and beyond

Authors: Pepke-Żaba J, Chorostowska-Wynimko J, Ryan S, Randerath W, Meiners S, Saglani S, Heuvelin E, Genton C, Gappa M, Powell P, Polverino E, Roche N, Siddiqui S
Publication type: Editorial
Published: 2025
https://doi.org/10.1183/2312508X.10022224
ELF | Patient involvement

Respiratory physiology: a patient perspective

Authors: Senek M, Powell P, Williams C, McNeil L, Galetti I, Hamerlijnck D, Rawlinson J
Publication type: Monograph chapter
Published: 2025
https://doi.org/10.1016/j.jaip.2025.04.051
Asthma | Digital health

Artificial Intelligence–Generated Answers to Patients’ Questions on Asthma: The Artificial Intelligence Responses on Asthma Study

Authors: Nigro M, Aliverti A, Angelucci A, Braido F, Canonica GW, Bossios A, Pinnock H, Boyd J, Powell P, Aliberti S, Amati F, Carpagnano GE, Cherneva RV, De Simoni A, Diver S, Fouka E, Karadag BT, Meshram PL, Mijakoski D, Ryan DP, Scarano P, Solanki S, Sreter KB, Stafler P, Ten Brinke A, Virchow CJ, Visca D, Vukicevic Lazarevic V, Wand O
Publication type: Academic Publication
Published: 2025
https://doi.org/10.2196/70970
Digital health

Impact of digital health on patient-provider relationships in respiratory secondary care based on qualitative and quantitative evidence: systematic review

Published: 2025
https://doi.org/10.1183/20734735.0008-2025
IPF | Pulmonary fibrosis

Our journey with pulmonary fibrosis: from challenges to change

Publication type: Academic Publication
Published: 2025
https://doi.org/10.1183/20734735.0231-2024

Living with pulmonary arterial hypertension: a patient’s perspective on dyspnoea crises

Publication type: Academic Publication
Published: 2024
https://doi.org/10.1183/13993003.00335-2024

European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness

Authors: Anne E. Holland Angela T. Burge, Amy Pascoe, Anna Spathis, Kristoffer Marsaa, Claudia Bausewein, Zainab Ahmadi, Adelle M. Gadowski, Phil Collis, Tessa Jelen, Charles C. Reilly John Solheim, Guido Vagheggini, Lynn F. Reinke, Lorena Romero, Anne-Marie Russell, Ravijyot Saggu, Chantal Vandendungen, Marlies Wijsenbeek, Thomy Tonia, Natasha Smallwood, and Magnus Ekström
Publication type: Guidelines
Published: 2024
https://doi.org/10.1183/13993003.00442-2023
Asthma | Chronic Cough | COPD

European Respiratory Society statement on frailty in adults with chronic lung disease

Authors: Christian R. Osadnik, Lisa J. Brighton, Chris Burtin, Matteo Cesari, Lies Lahousse, Will D.C. Man, Alessandra Marengoni, Andreja Sajnic, Jonathan P. Singer, Lies ter Beek, Ioanna Tsiligianni, Janos T. Varga, Stefano Pavanello, Matthew Maddocks
Publication type: ERS Statement
Published: 2023
https://doi.org/10.1183/13993003.01727-2023
Clinical guidelines | Rare disease

ERS/EBMT clinical practice guidelines on treatment of pulmonary chronic graft-versus-host disease in adults

Authors: Saskia Bos, John Murray, Monia Marchetti, Guang-Shing Cheng, Anne Bergeron, Daniel Wolff, Clare Sander, Akshay Sharma, Sherif M. Badawy, Zinaida Peric, Agnieszka Piekarska, Joseph Pidala, Kavita Raj, Olaf Penack, Samar Kulkarni, Molly Beestrum, Andrea Linke, Matthew Rutter, Courtney Coleman, Thomy Tonia, Hélène Schoemans, Daiana Stolz, Robin Vos
Publication type: Guidelines
Published: 2024
https://doi.org/10.1183/13993003.00347-2023
Mechanical ventilation | Treatment

European Respiratory Society and European Society of Intensive Care Medicine statement: Dyspnoea in acutely ill mechanically ventilated adult patients

Authors: Alexandre Demoule, Maxens Decavele, Massimo Antonelli et al.
Publication type: Joint Statement
Published: 2024
https://doi.org/10.1183/13993003.02107-2022
Patient involvement

Core outcome sets, developed collaboratively with patients, can improve the relevance and comparability of clinical trials

Authors: Alexander G. Mathioudakis, Ekaterina Khaleva, Markus Fally et al.
Publication type: Academic Publication
Published: 2023
https://doi.org/10.1183/13993003.02014-2022
Clinical guidelines | COPD | Treatment

European Respiratory Society Clinical Practice Guideline: Palliative care for people with chronic obstructive pulmonary disease or interstitial lung disease

Authors: Daisy J.A. Janssen, Sabrina Bajwah, Michele Hilton Boon et al.
Publication type: Guidelines
Published: 2023
https://doi.org/10.1183/20734735.0159-2022
Patient involvement

Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations

Authors: Courtney Coleman, Olivia Fulton, Jeanette Boyd et al.
Publication type: Academic Publication
Published: 2023
https://doi.org/10.1183/23120541.00148-2023
COPD

Patients’ acceptance of outcome and experience measurements during hospitalisation for COPD exacerbations: a CICERO Clinical Research Collaboration–European Lung Foundation online patient survey

Authors: Iwein Gyselinck, Sanjay Ramakrishnan, Kristina Vermeersch et al.
Publication type: Academic Publication
Published: 2023

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