Publications

https://europeanlung.org/wp-content/uploads/2023/02/Mental-health-consultation_Final.pdf

European Lung Foundation submission to the European Commission’s call for evidence on mental health: “A comprehensive approach to mental health”

Author: ELF

Publication type: Consultation Response

Published: 2023

https://erj.ersjournals.com/content/early/2022/10/13/13993003.03201-2021

Lung Cancer

European Respiratory Society Guideline on various aspects of quality in lung cancer care

Author: ERS; ELF

Publication type: Guidelines

Published: 2022

https://europeanlung.org/wp-content/uploads/2022/10/Lungs-Europe-response_Proposal-for-a-legislative-initiative-on-cross-border-activities-of-associations.pdf

Lungs Europe submission to the European Commission’s consultation: Single market – Proposal for a legislative initiative on cross-border activities of associations

Authors: ELF, ERS

Publication type: Consultation Response

Published: 2022

https://europeanlung.org/wp-content/uploads/2022/10/090166e5f173cf71.pdf

ELF submission to the European Commission’s consultation on Global Health – new EU strategy

Authors: ERS, ELF

Publication type: Consultation Response

Published: 2022

https://europeanlung.org/wp-content/uploads/2022/08/ERS_ELF_response-to-2009-Council-Recommendation-update.pdf

Smoking and e-cigarettes

Response of ERS and ELF to European Commission’s call for evidence to revise 2009 Recommendation on Smoke-free Environments

Authors: ERS, ELF

Publication type: Consultation Response

Published: 2022

https://europeanlung.org/wp-content/uploads/2022/08/ELF-feedback-submission-to-EHDS-proposal_final.pdf

Digital health

ELF submission to the European Commission’s proposal on the European Health Data Space

Authors: ELF, ERS

Publication type: Consultation Response

Published: 2022

https://breathe.ersjournals.com/content/17/1/200327

How treatment burden affects the carer: the experiences of three individuals, a mother, a daughter and a husband

Authors: Jessica Denning, Pam Carter, Liam Galvin, Lucy Pritchard

Publication type: Academic Publication

Published: 2021

https://breathe.ersjournals.com/content/17/2/210045

Balancing treatment and side-effects in severe asthma: a patient and professional perspective

Authors: Brenda Semple, Celeste Porsbjerg, Courtney Coleman

Publication type: Academic Publication

Published: 2021

https://breathe.ersjournals.com/content/17/4/210145

Patient experiences of biologic treatment for severe asthma: the good, the outstanding and the deeply frustrating

Authors: Jessica Denning, Jenny Negus, Niamh Cullen

Publication type: Academic Publication

Published: 2021

https://erj.ersjournals.com/content/early/2022/05/17/13993003.00300-2022

Task Force report: European Respiratory Society statement for defining respiratory exacerbations in children and adolescents with bronchiectasis for clinical trials

Authors: Anne B Chang, Angela Zacharasiewicz, Vikas Goyal, Jeanette Boyd, Efthymia Alexopoulou, Stefano Aliberti, Leanne Bell, Andrew Bush, Alison Claydon, Carolina Constant, Rebecca Fortescue, Adam T Hill, Bulent Karadag, Zena Powell, Christine Wilson, Keith Grimwood, Ahmad Kantar, other members of Child-BEAR-Net

Publication type: Academic Publication

Published: 2022

https://breathe.ersjournals.com/content/17/3/210105

Management of children and adolescents with bronchiectasis: summary of the ERS clinical practice guideline

Authors: Anne B. Chang, Keith Grimwood, Jeanette Boyd, Rebecca Fortescue, Zena Powell, Ahmad Kantar

Publication type: Academic Publication

Published: 2021

https://erj.ersjournals.com/content/early/2021/02/04/13993003.02990-2020

Task Force report: European Respiratory Society guidelines for the management of children and adolescents with bronchiectasis

Authors: Anne B. Chang, Rebecca Fortescue, Keith Grimwood, Efthymia Alexopoulou, Leanne Bell, Jeanette Boyd, Andrew Bush, James D. Chalmers, Adam T. Hill, Bulent Karadag, Fabio Midulla, Gabrielle B. McCallum, Zena Powell, Deborah Snijders, Woo-Jung Song, Thomy Tonia, Christine Wilson, Angela Zacharasiewicz, Ahmad Kantar

Publication type: Academic Publication

Published: 2021

https://erj.ersjournals.com/content/59/6/2200264

International consensus statement on quality standards for managing children/adolescents with bronchiectasis from the ERS CRC Child-BEAR-Net

Authors: Anne B. Chang, Jeanette Boyd, Andrew Bush, Adam T. Hill, Zena Powell, Angela Zacharasiewicz, Efthymia Alexopoulou, James D. Chalmers, Andrew J. Collaro, Carolina Constant, Konstantinos Douros, Rebecca Fortescue, Matthias Griese, Jonathan Grigg, Andreas Hector, Bulent Karadag, Oleksandr Mazulov, Fabio Midulla, Alexander Moeller, Marijke Proesmans, Christine Wilson, Stephanie T. Yerkovich, Ahmad Kantar, Keith Grimwood

Publication type: Academic Publication

Published: 2022

https://openres.ersjournals.com/content/7/3/00122-2021

Clinical and research priorities for children and young people with bronchiectasis: an international roadmap

Authors: Anne B. Chang, Jeanette Boyd, Leanne Bell, Vikas Goyal, I. Brent Masters, Zena Powell, Christine Wilson, Angela Zacharasiewicz, Efthymia Alexopoulou, Andrew Bush, James D. Chalmers, Rebecca Fortescue, Adam T. Hill, Bulent Karadag, Fabio Midulla, Gabrielle B. McCallum, Deborah Snijders, Woo-Jung Song, Thomy Tonia, Keith Grimwood, Ahmad Kantar

Publication type: Academic Publication

Published: 2021

https://breathe.ersjournals.com/content/17/1/200340

The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Authors: Marion Wilkens, Michael Bartlett, Frank Willersinn, Karen O'Hara, Jeanette Boyd, Jessica Denning

Publication type: Academic Publication

Published: 2021

https://books.google.co.uk/books?hl=en&lr=&id=5c9EEAAAQBAJ&oi=fnd&pg=PA11&dq=%22p+powell%22++lung&ots=DyNKKCBhrs&sig=6fxU9QgiclUxBz55s2Rk0g5akdc&redir_esc=y#v=onepage&q=%22p%20powell%22%20%20lung&f=false

Pulmonary Rehabilitation: ERS Monograph 93 – Patient Experiences

Authors: Samantha L. Harrison, Pippa Powell, Aroub Lahham

Publication type: Monograph chapter

Published: 2021

https://erj.ersjournals.com/content/58/suppl_65/PA1805.short

Rethinking COPD Exacerbations: a global patient perspective

Authors: Chris Mwasuku, Karolina Krassowska, Courtney Coleman, Pippa Powell, Mona Bafadhel

Publication type: Academic Publication

Published: 2021

https://www.ersnet.org/wp-content/uploads/2022/03/Advocacy-statement-of-the-European-Respiratory-Society-on-women-and-respiratory-diseases_8-March-2022-1.pdf#page=38

Advocacy statement of the European Respiratory Society on women and respiratory diseases -10. Patient Perspective

Authors: Kjeld Hansen, Pippa Powell, Jessica Denning

Publication type: ERS Statement

Published: 2022

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Publications

European Lung Foundation submission to the European Commission’s call for evidence on mental health: “A comprehensive approach to mental health”

European Respiratory Society Guideline on various aspects of quality in lung cancer care

Lungs Europe submission to the European Commission’s consultation: Single market – Proposal for a legislative initiative on cross-border activities of associations

ELF submission to the European Commission’s consultation on Global Health – new EU strategy

Response of ERS and ELF to European Commission’s call for evidence to revise 2009 Recommendation on Smoke-free Environments

ELF submission to the European Commission’s proposal on the European Health Data Space

How treatment burden affects the carer: the experiences of three individuals, a mother, a daughter and a husband

Balancing treatment and side-effects in severe asthma: a patient and professional perspective

Patient experiences of biologic treatment for severe asthma: the good, the outstanding and the deeply frustrating

Task Force report: European Respiratory Society statement for defining respiratory exacerbations in children and adolescents with bronchiectasis for clinical trials

Management of children and adolescents with bronchiectasis: summary of the ERS clinical practice guideline

Task Force report: European Respiratory Society guidelines for the management of children and adolescents with bronchiectasis

International consensus statement on quality standards for managing children/adolescents with bronchiectasis from the ERS CRC Child-BEAR-Net

Clinical and research priorities for children and young people with bronchiectasis: an international roadmap

The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Pulmonary Rehabilitation: ERS Monograph 93 – Patient Experiences

Rethinking COPD Exacerbations: a global patient perspective

Advocacy statement of the European Respiratory Society on women and respiratory diseases -10. Patient Perspective

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