ELF Patient Organisation Network

AFPF's aim is to create a broad community of patients suffering from Pulmonary Fibrosis and their loved ones. To support , inform, educate them and promote research on PF.

Covers:

• Idiopathic pulmonary fibrosis

Alpha-1 France (ADAAT)

The ADAAT association brings together families suffering from an alpha-1 antitrypsin deficiency. We help patients in their health journey. We work with doctors to improve patient care and we help research.

Covers:

• Alpha-1 antitrypsin deficiency

ALERMA is responsible for informing, training and guiding respiratory patients in Malaga and its province.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Aspergillosis
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

The Association of Patients with Respiratory Failure and Lung Transplantation (APRFLT) is an organisation that fully understands the challenges that lung disease patients face. Therefore, we strive to promote contacts and empathy between patients with lung diseases, as well as their adaptation to a changed lifestyle. We aim to improve their mental and physical well-being through forms of personal, organizational and financial support. We also help spread scientific information about the disease and access to innovative therapies. APRFLT is a full member of the ESOT-ETPO Alliance.

Covers:

• Adult asthma
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• COPD
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Lung cancer
• Lung surgery
• Lung transplantation
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea

Apnoic Italian Association APS

Covers:

• Sleep apnoea

The AAG is highly specialised: gathering more than 110 patients all affected by severe asthma or EGPA. It's a unique association focused on the pathology of severe asthma. Our main focus is to help emerging the 30,000 potential severe asthma patients throughout Italy. We are a part of the associative network of FederAsma and Allergies ODV, a member of EFA , and participate in the 3TR project.

Covers:

• Asthma

Bronchiectasis Italian Association (AIB)

AIB is an Italian patient association and its mission is "Help to know and handle bronchiectasis".

Covers:

• Bronchiectasis

COPD Patient Association, Italy (Ass BPCO)

The Association aims to increase the knowledge of COPD and its management by patients and their families on the basis of the most recent scientific findings, in order to improve their health conditions and quality of life. It acts as an interlocutor for the institutions, to pursue the implementation of tools, including legislative ones, aimed at improving the protection of the chronic respiratory patient, promoting information, education and prevention campaigns and supporting scientific medical and pharmacological research.

Covers:

• COPD

Asthma + Lung UK will bring lasting benefits to everyone in the UK affected by asthma and other lung diseases. It is a powerful voice for all respiratory diseases for change and to get more, and better, investment in the NHS.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Covers:

• Allergies
• Asthma

Asthma Association Netherlands and Davos (asthmaVereniging Nederland en Davos) advocates for people living with severe asthma. It shares knowledge and offers support to people with the condition.

Covers:

• Asthma

The Asthma Society of Ireland’s mission is to stop asthma deaths in Ireland. We are the voice of the 380,000 people with asthma in Ireland, and our work radically transforms their quality of life. We fight asthma with every breath. Our vision is that everyone with asthma in Ireland lives a full life, symptom-free.

Covers:

• Adult asthma
• Asthma

Asthma- and Allergy Association, Sweden

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma and Allegy, Belgium

We aim to provide good information on Asthma and Allergy and this to patients and everyone concerned.

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Asthma-Allergy Denmark

Covers:

• Allergies
• Asthma

Asthma.rs, Serbia

Astma.rs is a non-profit organisation with the main goal to give support and information to patients and their families about asthma, HOBP, allergy, and other respiratory diseases.

Covers:

• Adult asthma
• Asthma
• Childhood asthma

Covers:

• Rare and orphan lung disease

Dutch Association of Pulmonary Fibrosis Patients

The Dutch Association of Pulmonary Fibrosis patients is there for pulmonary fibrosis patients and their families. Pulmonary fibrosis is a rare disease which effects a few thousand patients in the Netherlands. We stimulate and financially support research into the causes and treatment of pulmonary fibrosis. We work closely together with healthcare professionals and with sister organisations throughout Europe. Together with the Dutch Lung Foundation we stand for patients with a lung disease. We believe that patients should be well-informed about their disease; it makes them stronger and helps them to get the best possible care.

Covers:

• Pulmonary Fibrosis