The ELF Patient Organisation Network is open to all and includes respiratory patient organisations in Europe.
Search for patient organisations, either by region, country or disease, using the filters below. More detailed information is available for the patient organisations that have provided them.
Are you a respiratory patient organisation working in Europe? Would you like to be part of the network? Please take 5 minutes to tell us about your organisation, and we will add you to our network.
Astma.rs is a non-profit organisation with the main goal to give support and information to patients and their families about asthma, HOBP, allergy, and other respiratory diseases.
We help families with a baby affected by a pulmonary malformation, giving moral and financial support.
Dutch Association of Pulmonary Fibrosis Patients
The Dutch Association of Pulmonary Fibrosis patients is there for pulmonary fibrosis patients and their families. Pulmonary fibrosis is a rare disease which effects a few thousand patients in the Netherlands. We stimulate and financially support research into the causes and treatment of pulmonary fibrosis. We work closely together with healthcare professionals and with sister organisations throughout Europe. Together with the Dutch Lung Foundation we stand for patients with a lung disease. We believe that patients should be well-informed about their disease; it makes them stronger and helps them to get the best possible care.
The Belgian Lung Foundation is fully committed to promoting lung health and combating respiratory diseases, with the aim of improving overall respiratory health in Belgium. Their mission is based on concrete actions, including public awareness, supporting research, developing prevention programs, and guiding patients in their care journey.
The association was founded 2015 with the aim of supporting pulmonary hypertension patients in Croatia, raising awareness and spreading information about pulmonary hypertension.
Patient led and patient funded local support group for patients with respiratory conditions, family, carers and friends.
Breathing Association was established to ease the lives of patients and their families with airway diseases, such as Asthma, COPD, and Bronchiectasis, and to assist in their joint representation in medical institutions and government bodies with professionalism, fairness, transparency, and faith in the way.
Bronchiektasen e.V. is the first patient organization in German-speaking countries dedicated to people living with bronchiectasis. Our mission is to connect patients, raise awareness, and strengthen their voice in research, healthcare, and policy. We advocate for earlier diagnosis, better quality of life, and increased recognition of this often-overlooked condition. Our vision: a self-determined life despite chronic illness – supported by knowledge, digital tools and a committed community.
The Bulgarian Society of Patients with Pulmonary Hypertension (BSPPH) is an organisation that fully understands the challenges faced by pulmonary hypertension (PH) patients and their loved ones. Therefore, we strive to encourage contacts and empathy between PH patients, as well as their adaptation to their changed lifestyle. We aim to improve their mental and physical well-being through forms of personal, organisational and financial support. We also help disseminate scientific information about the disease. Access to innovated therapies. BSPPH is a member of the largest patient association in Bulgaria - National Patients' Organization , which is officially recognised by the Ministry of Health as the only nationally represented patient organisation in the country. BSPPH is a full member of PHA Europe, and EURORDIS. The association also has an excellent cooperation with ELF.
The Canadian Pulmonary Fibrosis Foundation (CPFF) is a registered Canadian charity established to provide hope and support for people affected by pulmonary fibrosis (PF). Our charitable registration # is 850554858RR0001. We work closely with patients and caregivers, medical experts, and governments. With the support of dedicated volunteers, staff and our sponsors and donors, we aim to achieve our mission and vision.
A strong patient group executive with a medical director forms the key infrastructure to the maintenance phase of CSAN. Improving patient-centered care structures for individuals with asthma remains the focus – and in particular for individuals with severe asthma, the most difficult-to-control 5-10% of asthma patients. This will hopefully lessen the impact of asthma currently within our Canadian health care system (severe asthma accounts for 50-60% cost of asthma).
We are a non-profit foundation working to improve the quality of life for people with respiratory and oncological diseases and their families. Our goal is to empower patients, promote education about their health, and provide a support network.
ConectAR is a community of people with respiratory diseases, their carers and interested citizens, researchers and health professionals, who are interested in co-creating solutions with a potential impact on health that can improve its quality through research and development processes.
