ELF Patient Organisation Network

Lung Fibrosis Forum Austria

Covers:

• Pulmonary Fibrosis

Swiss Lung Association

The Swiss Lung Association provides care and advice for people with lung and respiratory diseases so that they can live as symptom-free and independently as possible and achieve a higher quality of life. Well-networked by experts, the Swiss Lung Association represents the concerns of its patients and promotes their self-help. Through prevention, the Lung League works to ensure that fewer people fall ill with lung and respiratory diseases.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

The Malta Health Network (MHN) promotes the health-related interests of patients and the wider community by updating itself about international ‘best practices’ and ‘capacity-building’. The MHN achieves this through its regular contacts with local and international health-related Governmental Organisations, Non-Governmental Organisations, ‘Not-for-Profit’ Organisations and Patient Representative Groups. The MHN strives to give patients a voice in health-related for a in Malta, in the EU and internationally. The MHN is independent of the Government of Malta and of any political party or organisation. When the MHN was established in 2007, it represented 20 founder-organisations: today it represents over 30. The MHN is especially active in promoting The European Charter of Patients’ Rights.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

MATIO Polish Cystic Fibrosis Foundation have been striving to improve the quality of life of their patients since 1996. The foundation was created that patients and their families do not feel lonely in the fight against illness. Loneliness in illness is the worst thing - especially which doesn't promise recovery.
We prepare a social campaign "Nationwide Cystic Fibrosis Week", we organize workshops for parents, training for doctors, teachers, medical students. We subsidize the purchase of medicines, individual rehabilitation stays and run a free rental of rehabilitation equipment "Deep breath". MATIO Foundation organizes social help, tailored to the current needs of those under their care.

Covers:

• Cystic fibrosis

Mesothelioma UK is a national specialist resource centre, specifically for the asbestos-related cancer, mesothelioma. The charity is dedicated to providing specialist mesothelioma information, support and education, and to improving care and treatment for all UK mesothelioma patients and their carers. The charity integrates into NHS front line services to ensure specialist mesothelioma nursing is available at the point of need. This is achieved through a growing network of specialist mesothelioma nurses, regionally based in NHS hospitals funded by Mesothelioma UK.

Covers:

• Lung cancer
• Mesothelioma

The association M.N.T. Mon Poumon Mon Air welcomes, supports and speaks out for people with the rare pulmonary non-tuberculous mycobacterial infection (NTM).

Covers:

• Non-tuberculosis mycobacteria

Belgian Association for the Fight Against Cystic Fibrosis

Covers:

• Cystic fibrosis

Moje Plíce is dedicated to:

• improving the lives of lung cancer patients in the Czech Republic through support, advocacy, and education
• increasing public awareness about lung cancer, its risk factors, and early detection methods to promote timely diagnosis and reduce stigma,
• providing emotional, financial, and logistical support to lung cancer patients and their families, ensuring they have access to necessary resources during their journey, and
• creating a supportive community of patients and caregivers, facilitating information sharing, peer support, and a sense of belonging.

Covers:

• Lung cancer

National organization Allergy and me, Serbia

Covers:

• Allergies

We aim to promote the uniting of all carriers of Alpha-1 antitrypsin deficiency and those who intend to contribute to the fight against this disease. We can protect those with the condition by facilitating access to services and information on the progress of research and to guarantee their rights as patients as well as inform and raise public awareness about the disease. We also aim to promote the dissemination of information to doctors, health professionals, public and private bodies also through the organisation of Congresses, Study Days.

Covers:

• Alpha-1 antitrypsin deficiency

The National Aspergillosis Centre Patients Support group Is funded by the NHS to improve awareness, give support & advice, provide a community for aspergillosis patients and support research.

Covers:

• Aspergillosis
• Asthma
• Bronchiectasis
• COPD
• Sarcoidosis
• Upper airways diseases

The National Asthma Council Australia (NAC) is a national not-for-profit advisory body for health professionals dedicated to the treatment of asthma and related conditions.

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Our mission is to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease. By supporting innovative research, working with patients and support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities for patients and healthcare providers, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients, and build a stronger network of doctors who are well-versed in treating this disease.

Covers:

• Non-tuberculosis mycobacteria

NTM Patient Care UK is a patient association and registered charity that is working to improve the lives of people with non-tuberculous
mycobacterial (NTM) infection in the UK. We are doing this by providing education and information to increase understanding of NTM
in both the clinical and patient communities. We are also working hard to improve support for NTM patients, their carers and families.

Covers:

• Non-tuberculosis mycobacteria

Open Academy & Patient-Library non profit GmbH

The OAKAD and patient library would like to support the establishment and maintenance of patient self-help groups and contribute to the transfer of skills and knowledge.

www.Patienten-Bibliothek.de

www.Patienten-Bibliothek.org

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Austrian Lung Union (ÖLU)

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Patient organisation Pulmonary Emphysema – COPD Germany

Covers:

• COPD

Lung Transplant Patient Association, Belgium

Covers:

• Lung transplantation