ELF Patient Organisation Network

Lung Foundation Netherlands

Lung Foundation Netherlands (Longfonds) is the leading not-for-profit lung health organisation and patients’ association in the Netherlands. We are the biggest private financier of lung research in Europe and have been funding major scientific research designed to generate vital knowledge about chronic lung diseases for over six decades. Longfonds campaigns to improve the quality of care and supports patients. As part of the organisation’s effort to improve lung health, Longfonds actively advocates policies that promote clean air.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Lung Cancer Europe (LuCE) is the voice of lung cancer patients, their families and survivors at a European level. LuCE provides a European platform for already existing lung cancer patient advocacy groups and supports the establishment of national lung cancer patient groups in different European countries where such groups do not yet exist. LuCE aims to raise awareness about inequities regarding the access to lung cancer treatment and care in Europe. Moreover, it advocates European policies that will lead to improvements in lung cancer prevention, early detection, treatment and care.

Covers:

• Lung cancer

Lung Foundation Australia is the nation’s leading and trusted lung health charity. We fund life-saving research, advocate for increased government support and deliver programs and services that transform the lives of those impacted by lung disease and lung cancer, giving hope in every breath.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

At the Lung Health Foundation, our unwavering commitment is to support and empower individuals living with lung disease across Canada. Through our range of community initiatives, grass-roots educational programs, research and advocacy, we elevate awareness and foster a compassionate environment for those affected by lung conditions, including their caregivers. We are dedicated to improving the lung health of Canadians.

Covers:

• Asthma
• COPD
• Lung cancer
• Pneumonia
• Pulmonary Fibrosis

Our vision is to create an easier life for patients and their relatives. By sharing the stories of patients and their relatives we may make their life more comfortable and more qualified. As a cooperation organisation, we aim to solve patients' problems and lead them for the necessary information.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Aspergillosis
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

Lung Fibrosis Forum Austria

Covers:

• Pulmonary Fibrosis

Swiss Lung Association

The Swiss Lung Association provides care and advice for people with lung and respiratory diseases so that they can live as symptom-free and independently as possible and achieve a higher quality of life. Well-networked by experts, the Swiss Lung Association represents the concerns of its patients and promotes their self-help. Through prevention, the Lung League works to ensure that fewer people fall ill with lung and respiratory diseases.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

The Malta Health Network (MHN) promotes the health-related interests of patients and the wider community by updating itself about international ‘best practices’ and ‘capacity-building’. The MHN achieves this through its regular contacts with local and international health-related Governmental Organisations, Non-Governmental Organisations, ‘Not-for-Profit’ Organisations and Patient Representative Groups. The MHN strives to give patients a voice in health-related for a in Malta, in the EU and internationally. The MHN is independent of the Government of Malta and of any political party or organisation. When the MHN was established in 2007, it represented 20 founder-organisations: today it represents over 30. The MHN is especially active in promoting The European Charter of Patients’ Rights.

Covers:

• Acute lower respiratory infections
• Acute respiratory distress syndrome
• Adult asthma
• Allergies
• Alpha-1 antitrypsin deficiency
• Asthma
• Bronchiectasis
• ChILD
• Childhood asthma
• COPD
• Cough
• COVID-19
• Cystic fibrosis
• Idiopathic pulmonary fibrosis
• Interstitial lung disease
• LAM
• Lung cancer
• Lung disease in children
• Lung surgery
• Lung transplantation
• Mesothelioma
• Non-tuberculosis mycobacteria
• Occupational lung disease
• Other lung diseases
• Pneumonia
• Pneumothorax
• Primary Ciliary Dyskinesia (PCD)
• Pulmonary arterial hypertension
• Pulmonary embolism
• Pulmonary Fibrosis
• Pulmonary Hypertension
• Pulmonary vascular disease
• Rare and orphan lung disease
• Sarcoidosis
• Sleep apnoea
• Sleep disordered breathing
• Smoking cessation
• Tuberculosis
• Upper airways diseases

MATIO Polish Cystic Fibrosis Foundation have been striving to improve the quality of life of their patients since 1996. The foundation was created that patients and their families do not feel lonely in the fight against illness. Loneliness in illness is the worst thing - especially which doesn't promise recovery.
We prepare a social campaign "Nationwide Cystic Fibrosis Week", we organize workshops for parents, training for doctors, teachers, medical students. We subsidize the purchase of medicines, individual rehabilitation stays and run a free rental of rehabilitation equipment "Deep breath". MATIO Foundation organizes social help, tailored to the current needs of those under their care.

Covers:

• Cystic fibrosis

Mesothelioma UK is a national specialist resource centre, specifically for the asbestos-related cancer, mesothelioma. The charity is dedicated to providing specialist mesothelioma information, support and education, and to improving care and treatment for all UK mesothelioma patients and their carers. The charity integrates into NHS front line services to ensure specialist mesothelioma nursing is available at the point of need. This is achieved through a growing network of specialist mesothelioma nurses, regionally based in NHS hospitals funded by Mesothelioma UK.

Covers:

• Lung cancer
• Mesothelioma

The association M.N.T. Mon Poumon Mon Air welcomes, supports and speaks out for people with the rare pulmonary non-tuberculous mycobacterial infection (NTM).

Covers:

• Non-tuberculosis mycobacteria

Belgian Association for the Fight Against Cystic Fibrosis

Covers:

• Cystic fibrosis

Moje Plíce is dedicated to:

• improving the lives of lung cancer patients in the Czech Republic through support, advocacy, and education
• increasing public awareness about lung cancer, its risk factors, and early detection methods to promote timely diagnosis and reduce stigma,
• providing emotional, financial, and logistical support to lung cancer patients and their families, ensuring they have access to necessary resources during their journey, and
• creating a supportive community of patients and caregivers, facilitating information sharing, peer support, and a sense of belonging.

Covers:

• Lung cancer

National organization Allergy and me, Serbia

Covers:

• Allergies

We aim to promote the uniting of all carriers of Alpha-1 antitrypsin deficiency and those who intend to contribute to the fight against this disease. We can protect those with the condition by facilitating access to services and information on the progress of research and to guarantee their rights as patients as well as inform and raise public awareness about the disease. We also aim to promote the dissemination of information to doctors, health professionals, public and private bodies also through the organisation of Congresses, Study Days.

Covers:

• Alpha-1 antitrypsin deficiency

The National Aspergillosis Centre Patients Support group Is funded by the NHS to improve awareness, give support & advice, provide a community for aspergillosis patients and support research.

Covers:

• Aspergillosis
• Asthma
• Bronchiectasis
• COPD
• Sarcoidosis
• Upper airways diseases

The National Asthma Council Australia (NAC) is a national not-for-profit advisory body for health professionals dedicated to the treatment of asthma and related conditions.

Covers:

• Adult asthma
• Allergies
• Asthma
• Childhood asthma

Our mission is to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease. By supporting innovative research, working with patients and support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities for patients and healthcare providers, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients, and build a stronger network of doctors who are well-versed in treating this disease.

Covers:

• Non-tuberculosis mycobacteria